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	<title>Disability News &#124; PatriciaEBauer.com &#187; trisomy 18</title>
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	<description>Disability News &#124; PatriciaEBauer.com</description>
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		<title>Op-ed: Daughter is &#8216;worth every tear&#8217;</title>
		<link>http://www.patriciaebauer.com/2010/05/05/daughter-worth-every-tear-29543/</link>
		<comments>http://www.patriciaebauer.com/2010/05/05/daughter-worth-every-tear-29543/#comments</comments>
		<pubDate>Wed, 05 May 2010 16:20:03 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[commentary]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[quality of life]]></category>
		<category><![CDATA[trisomy 18]]></category>
		<category><![CDATA[disabiity news and commentary]]></category>
		<category><![CDATA[intellectual disability]]></category>
		<category><![CDATA[prenatal testing]]></category>
		<category><![CDATA[Rick Santorum]]></category>

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		<description><![CDATA[Rick Santorum, former Republican senator from Pennsylvania and Fox News contributor, celebrates his daughter&#8217;s second birthday with an op-ed in the Philadelphia Inquirer. Isabella has Trisomy 18, and has survived despite the dire predictions of doctors and experts. Santorum says Bella&#8217;s life may not be long, but &#8220;she is worth every tear.&#8221; An excerpt: Being [...]]]></description>
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		<slash:comments>1</slash:comments>
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		<title>Hospice program assists parents with prenatal diagnoses</title>
		<link>http://www.patriciaebauer.com/2009/11/05/hospice-prenatal-diagnosis-25081/</link>
		<comments>http://www.patriciaebauer.com/2009/11/05/hospice-prenatal-diagnosis-25081/#comments</comments>
		<pubDate>Thu, 05 Nov 2009 21:38:36 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[families]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[trisomy 18]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Hospice of Michigan]]></category>
		<category><![CDATA[Kysers]]></category>
		<category><![CDATA[Perinatal Care Program]]></category>
		<category><![CDATA[Trudy McKanna]]></category>

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		<description><![CDATA[From the Grand Rapids [MI] Press: The Perinatal Care Program provided by Hospice of Michigan offers comfort and guidance to families coping with a prenatal diagnosis of a life-limiting condition. (At left, Jody Kyser and her daughter Chloe, who had Trisomy 18). The program is one of only four in the state that offers support [...]]]></description>
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		<slash:comments>0</slash:comments>
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		<title>&#8217;99 Balloons&#8217; video a tribute to son&#8217;s short life</title>
		<link>http://www.patriciaebauer.com/2009/06/24/99-balloons-19055/</link>
		<comments>http://www.patriciaebauer.com/2009/06/24/99-balloons-19055/#comments</comments>
		<pubDate>Wed, 24 Jun 2009 14:52:57 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[first-person]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[personal stories]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[trisomy 18]]></category>
		<category><![CDATA[video]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Eliot Mooney]]></category>
		<category><![CDATA[family]]></category>
		<category><![CDATA[Ginny Mooney]]></category>
		<category><![CDATA[Hazel Mooney]]></category>
		<category><![CDATA[Matt Mooney]]></category>
		<category><![CDATA[religion]]></category>

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		<description><![CDATA[From the Today Show, with video: Ginny and Matt Mooney learned before birth that their son Eliot would be born with a rare genetic syndrome called Trisomy 18.  Doctors told them that if their son lived through childbirth, he would probably not survive more than a few weeks. They decided to document and celebrate their [...]]]></description>
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		<slash:comments>2</slash:comments>
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		<title>Women speak out about their late-term choices</title>
		<link>http://www.patriciaebauer.com/2009/06/08/late-term-choices-17949/</link>
		<comments>http://www.patriciaebauer.com/2009/06/08/late-term-choices-17949/#comments</comments>
		<pubDate>Mon, 08 Jun 2009 11:58:02 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[abortion]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[personal stories]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[trisomy 18]]></category>
		<category><![CDATA[Anderson Cooper]]></category>
		<category><![CDATA[anencephaly]]></category>
		<category><![CDATA[Diane Elder]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Lynda Waddington]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=17949</guid>
		<description><![CDATA[Anderson Cooper&#8217;s 360 on CNN carries two first-person accounts from women who received prenatal diagnoses of fetal abnormalities. Lynda Waddington, who received a diagnosis of anencephaly, got an abortion; Diane Elder (left), who got a diagnosis of Trisomy 18, carried her child to term. The Waddington interview aired first; Elder wrote the show an email [...]]]></description>
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		<slash:comments>0</slash:comments>
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		<item>
		<title>Santorum: &#8216;Imperfect&#8217; children remind us of deeper truths</title>
		<link>http://www.patriciaebauer.com/2008/09/27/santorum-oped-3313/</link>
		<comments>http://www.patriciaebauer.com/2008/09/27/santorum-oped-3313/#comments</comments>
		<pubDate>Sat, 27 Sep 2008 13:22:36 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[abortion]]></category>
		<category><![CDATA[Campaign 2008]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[politics]]></category>
		<category><![CDATA[religion]]></category>
		<category><![CDATA[selective termination]]></category>
		<category><![CDATA[trisomy 18]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Rick Santorum]]></category>
		<category><![CDATA[Sarah Palin]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=3313</guid>
		<description><![CDATA[Writing in the Philadelphia Inquirer, former Pennsylvania senator Rick Santorum says the Palin family is showing the nation &#8220;both the joy and the difficulty of having a disabled child.&#8221; Santorum says he and his wife four months ago had a daughter, Bella, who was subsequently diagnosed with Trisomy 18, &#8220;a syndrome with a mortality rate [...]]]></description>
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		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>Congress OKs Kennedy-Brownback disability diagnosis bill</title>
		<link>http://www.patriciaebauer.com/2008/09/25/kennedy-brownback-3-3302/</link>
		<comments>http://www.patriciaebauer.com/2008/09/25/kennedy-brownback-3-3302/#comments</comments>
		<pubDate>Fri, 26 Sep 2008 03:27:10 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[abortion]]></category>
		<category><![CDATA[cystic fibrosis]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[families]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[intellectual/developmental disabilities]]></category>
		<category><![CDATA[law]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[PB Articles & Essays]]></category>
		<category><![CDATA[personal stories]]></category>
		<category><![CDATA[politics]]></category>
		<category><![CDATA[public attitudes]]></category>
		<category><![CDATA[selective termination]]></category>
		<category><![CDATA[spina bifida]]></category>
		<category><![CDATA[trisomy 18]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Edward M. Kennedy]]></category>
		<category><![CDATA[George Bush]]></category>
		<category><![CDATA[National Down Syndrome Congress]]></category>
		<category><![CDATA[National Down Syndrome Society]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[Sam Brownback]]></category>
		<category><![CDATA[Trisomy 18 Foundation]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=3302</guid>
		<description><![CDATA[By Patricia E. Bauer The House has joined the Senate in passing a measure that disability rights advocates hope will fundamentally change the conversations that are taking place between pregnant American women and their doctors. Passed on a voice vote on Thursday, the bill would provide for accurate, up-to-date information and support for parents who [...]]]></description>
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		<slash:comments>9</slash:comments>
		</item>
		<item>
		<title>&#8216;When a baby is destined to die&#8217;</title>
		<link>http://www.patriciaebauer.com/2008/03/27/when-a-baby-is-destined-to-die-1836/</link>
		<comments>http://www.patriciaebauer.com/2008/03/27/when-a-baby-is-destined-to-die-1836/#comments</comments>
		<pubDate>Thu, 27 Mar 2008 18:19:38 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[end of life]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[trisomy 18]]></category>

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		<description><![CDATA[Perinatal hospices support families with a terminal prenatal diagnosis From MSNBC.com: Advances in prenatal screening mean that more families are receiving difficult diagnoses, and are making choices about whether to continue or terminate a pregnancy. Perinatal hospices aim to support families who receive a terminal prenatal diagnosis and decide to continue the pregnancy. MSNBC spends [...]]]></description>
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		<slash:comments>0</slash:comments>
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