U.S. News & World Report lays out a list of tips for financial planning on behalf of children with disabilities. Many of these kids will require financial support throughout their lives, writes Kimberly Palmer. Government programs can cover some basic medical care, but people will lose eligibility if they have more than $2,000 in assets. Parents need to use wills and trusts to ensure that kids will have the support they need when they grow up.

Among her suggestions:

• Establish legal guardianship;
• Protect your child’s eligibility for public benefits; and
• Think about insurance policies and special-needs trusts.

NPR features a series on students with disabilities preparing and transitioning to college with the following segments:

Q&A: Prepping Kids With Disabilities For College—NPR

Roger Diehl (photo left), a freshman at the University of Wisconsin-Madison who has Asperger’s, attention deficit hyperactivity disorder (ADHD), and depression, and his mother Sita Diehl, who runs Tennessee’s National Alliance On Mental Illness (NAMI), answer questions about getting ready for college.

Roger emphasizes the importance of focusing on the individual strengths and interests of students while learning social rules. Sita says social support is essential, particularly family and good friends, when considering placement.

See earlier post on Roger Diehl here.

10 Tips For College Students With Disabilities—NPR

Clinical psychologist and author Kathleen G. Nadeau shares strategies from her book, “Survival Guide for College Students with ADHD or LD” for developing learning and organization strategies to cope with learning disabilities at college.

Learning To Thrive With Attention Deficit Disorder—NPR

Emily Algire shares her story of transitioning to college as a student with attention deficit disorder (ADD).

“I think she’s got very good self-awareness” says [Emily's mother Betty] Overby. And all the tools she’s been taught for coping with her ADD are helping her feel strong.”

Editor’s note: Are Emily and Betty any relation to NPR correspondent Peter Overby?

(NPR photo)

By Sue Shellenbarger in the Wall Street Journal:

Students with learning disabilities are applying to colleges at five times the rate of the 1980s; colleges have only recently begun to provide services for qualified students with disabilities and attention deficit hyperactivity disorder. Attitudes and programs vary widely between schools.

While federal law has led to standardized jargon and services in K-12 education, the law for colleges simply requires them to make “reasonable accommodations” for students with disabilities.

Colleges lack universal labels to describe their supports, and guidebooks and educational consultants use no less than a half-dozen terms … to describe various service levels.

Shellenbarger offers tips and resources to help parents cut through the thicket, and says campus visits are crucial in selecting a school.

See also : Peterson’s: Colleges for Students with Learning Disabilities.

From USA Today:

Airline travel has many characteristics that can trigger meltdown in kids with autism, experts say. Among other things, air travel involves breaks in routine, enclosure in tight spaces, crowds, noise, and demands that kids sit still for long periods of time.

What can parents do to reduce the stress? Prepare kids for the trip by sharing photos of airport terminals, planes and destinations. Let kids make small choices, so they feel some measure of control. Bring along familiar books, toys, headphones and snacks. And let the airline know if you’ll need accommodations.

From The Associated Press:

Patient websites enable those with a range of critical and chronic illnesses to provide progress reports and receive support — all without having to repeat details in exhausting phone calls. Medical professionals praise the online tools for addressing the “emotional needs” of patients.

Free online services like CaringBridge and Carepages offer user-friendly formats that allow people to quickly set up sites to share medical and personal news. CaringBridge is supported primarily by donations from users, as well as sponsor fees from hospitals. CarePages also has arrangements with hospitals and sells advertisements.

On both sites, patients and family members share information about treatment and recovery from illnesses, accidents, or other medical crises. “We just think it’s made a huge difference for families,” Alan Goldbloom, president and CEO of Children’s Hospitals and Clinics of Minnesota, says of CaringBridge.

On ABC Good Morning America, video of an extended interview with Dan Habib, director/producer of ‘Including Samuel.’ The recently released documentary chronicles his son’s journey through elementary school in New Hampshire. Habib explains the philosophy behind the decision to include Samuel in general education classes (he has cerebral palsy), and shares footage of him interacting successfully with classmates.

Interviewer Marysol Castro poses some skeptical questions, which Habib handles with ease.

An excerpt:

Habib: … Disability is part of diversity, just like ethnic diversity and racial diversity. You create a society where that’s accepted as the real world. And kids need to understand this is the real world. Kids with disabilities and adults with disabilities will be living and working alongside them.

… [We want people] to see disability part as an enrichment of our culture — not something we that need to fix. For a while, we always focused on ‘we need to fix Daniel’. Now we realize we just need to accept him as our son, for who he is, and his disability is just part of who he is.

Earlier posts here.

About two-thirds of pediatric cancer survivors experience at least one late health effect of treatment, and for more than one-quarter of survivors it is severe or life-threatening.

From the Los Angeles Times, an extended feature about young adults who have survived childhood cancer only to find that their health is now threatened by the very treatments that once saved their lives

Cancer therapies injure, starve or kill healthy cells along with malignant ones, and as a consequence, survivors have a heightened risk of health problems, including early heart attacks, second cancers, stunted growth and infertility.

… The developing brain — and psyche — can be affected as well. Radiation to the brain can result in a drop of 20 or more IQ points, causing learning disabilities for some. And while some cured youngsters enter adulthood feeling a renewed sense of purpose, others must deal with lingering bitterness and trauma from their treatment, which can emerge as depression or anxiety when they become adults.

… Only recently is the medical community understanding the importance of lifelong health monitoring to help them avoid, or detect early, the host of medical risks that could lie in their path.

Related links:

• Programs for childhood cancer survivors
• Survivors tell of their experiences with childhood cancer