See the original here.

Just when you think you’ve heard it all, people come up with some new ones. Questions, that is — about Sarah Palin’s baby son, Trig Paxson Van Palin, who has Down syndrome (at left with sister Piper at the Republican National Convention). Here are answers to some common questions.

1)  Down syndrome — that’s really bad, right? Doesn’t that mean he’s sickly and won’t live very long?

First of all, let’s think about this baby as just that — a baby. People with Down syndrome vary widely, and each has a unique personality, temperament, and combination of strengths and challenges. We haven’t been told anything about Trig’s health status yet, except that he has Down syndrome.

In general, people with Down syndrome have some degree of mild to moderate intellectual disability and have a higher risk for a variety of health problems, particularly heart trouble. At the same time their life expectancies have increased dramatically, from an average of about 9 years in the 1920s, to something reaching into the 60s today. (See my post here on Bert Holbrook Jr. of Waseca County, Minnesota, who just celebrated his 80th birthday.)

As recently as the 1960s, people didn’t know that people with Down syndrome were capable of learning, and sent them to institutions where they were most often neglected or abused. Most of the very negative images about them, and the worst health outcomes, date from that time.

With the improvements in education and health care of the last few decades, it’s not unreasonable to expect that children with Down syndrome born today can enjoy full, rich lives, form satisfying relationships, and gain skills that will allow them to work and make positive contributions to their families and communities.

2) If Palin opposes abortion rights, as she says, why did she have an amnio? Wasn’t that a waste of money?

Many women who oppose abortion nonetheless have prenatal testing so they can get information that may be useful in planning for their baby’s delivery and care. Gov. Palin has said she was glad to receive Trig’s diagnosis before he was born so she could learn about Down syndrome and come to terms with her son’s disability before she met him.

3) Ninety percent of American women who get a prenatal diagnosis of Down syndrome get an abortion. Doesn’t that prove people with Down syndrome have terrible lives?

Actually, no. People with Down syndrome are valued, valuable and contributing members of happy families. Their families report deep attachment to their children, and are saddened by those abortion statistics. Family members attribute the numbers to widespread public ignorance about people with Down syndrome; doctors who lack current information and aren’t well-trained to deliver prenatal diagnoses; lingering fears and stigma left over from the days when these people were institutionalized under horrible conditions; and unrealistic desires for the “perfect child.” See also this post.

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From Reuters/[UK] Guardian:

As Beijing prepares to host the Paralympics, China advertises significant improvements for the nation’s 83 million people with disabilities. Still, people with disabilities say stigma, isolation and poor facilities are widespread.

Miao Qi, a 32-year-old woman from Beijing whose leg was amputated following bone cancer, said her disability prevented her from accessing higher education and getting a job. She has not left the apartment she shares with her parents for more than a year.

“Other people look at you strangely — this has a psychological impact. Perhaps they don’t do it maliciously but just think: ‘What’s wrong with that young woman? So pretty, but why is she that way?’” she said.

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From the Associated Press, Reuters video:

Palestinian police say that a son and daughter with intellectual disabilities were locked away by their parents for decades to avoid the stigma of disability in Palestinian society and to protect the marriage prospects of a healthy sibling.

Authorities said the case highlighted the plight of people with intellectual disabilities and mental health problems in a society where supports are not provided and the subject is often taboo.

Police said the pair were found locked in concrete rooms that reeked of sweat and urine.

From USA Today:

A new report from the Alzheimer’s Association reveals that many patients in the early stages of the disease say they are prematurely treated as if they are debilitated, even by close friends and relatives.

It is estimated that about 2.6 million Americans are in the early stages of Alzheimer’s, a form of dementia that slowly destroys memory and independent functioning skills.

Among the top concerns listed by early Alzheimer’s patients:

Frustration with how the stigma and misconceptions affect their relationships.

Dissatisfaction with the medical community, including difficulties in getting the right diagnosis, treatment and follow-up care.

A lack of knowledge about the availability of support services.

The prospect of relying more on friends and family to meet daily needs as memory fails.

The desire to stay involved.

Experts say the report is a clear message that people with early stage Alzheimer’s want to be treated with respect and dignity.

Josie Byzek, writing in The Progressive, says she won’t be joining the boycott of “Tropic Thunder,” but she hopes the controversy will focus attention on “the real pain that slurs cause people with disabilities.” She’d like to see some films that portray people with disabilities as three dimensional people, as well as some with “disabled actors playing roles that have nothing to do with disability.”

An excerpt:

Any person with a disability who has been the target of the R-word knows it is painful. But for decades, many of us have tried to get the media, especially Hollywood, to realize it’s even more hurtful to exploit disability-themed inspiration and pity in order to get a prize of some sort.

… Movies like these depend on nondisabled audiences dehumanizing or infantilizing us.

We don’t want your pity. We want dignity.

Byzek is managing editor of New Mobility (www.newmobility.com), a lifestyle magazine for wheelchair users.

Writing in the [UK] Guardian, Peter V. Berns says the portrayal of a person with an intellectual disability in the film “Tropic Thunder” is offensive and shouldn’t be tolerated.

He says the use of the word “retard” and other insulting language in the film could spark abuse, bullying and violence against people with intellectual disabilities. An excerpt:

The oppressive power of these words has deep resonance for individuals with intellectual disabilities and for the disability rights movement. In the lives of people with intellectual disabilities, the use of the R-word in this film represents a serious setback. The portrayal of this character sends a clear message to the audience that the lives of people with intellectual disabilities are worth less and that it is acceptable to degrade and dehumanise them.

The history of people with intellectual disabilities in the U.S. evokes a dark time when these individuals suffered institutionalization, forced sterilization, segregation and other abuses. While the U.S. has made monumental strides toward including people with disabilities in the community, further progress will only be made if we speak out against bigotry, mistreatment and disrespect wherever we see it.

… We invite our colleagues in the disability rights movement, worldwide, to stand together and work to educate, inform and inspire people of conscience. Critics may try to dismiss our criticism as just some kind of politically correct talk, but that rejoinder is far too simplistic in the face of the suffering people with intellectual disabilities have experienced in their lives and throughout history. Individuals with disabilities should enjoy human rights on an equal basis with others without stigmatization, discrimination or prejudice. It is they who define themselves.

Peter V. Berns is the executive director of The Arc of the United States, the world’s largest community-based organization of and for people with intellectual and developmental disabilities.