By Karen Meyer on WLS-TV, Chicago (ABC affiliate), with video:

Correspondent Karen Meyer interviews people with disabilities and disability rights advocates who are offended by the use of the word “retard” in the film “Tropic Thunder.”

Meyer, who is deaf, speaks and signs simultaneously while the text of her words is spelled out across the screen in close-captioning. “Whether it’s language or action, negative portrayals of people with disabilities often opens doors to prejudice and abuse,” she says.

She uses her own voice to narrate the piece, and includes footage and interviews of people with disabilities. Here’s what people were saying:

“Words are very powerful and your words form attitudes, beliefs, values that turn into actions. People who might watch this movie might say, well people who are retards, I don’t want them working in my company, I don’t want them living in my neighborhood I don’t want them participating in my schools next to my child.”

— Jon Voit,  president and CEO of Seguin Services, a not-for-profit serving people with developmental disabilities.

“When I’ve seen the movie I did not like how they put us down. It was the very vulgarest movie I’ve ever seen. The language and how they made fun of handicapped people.”

— Glenora Mills, a woman with a developmental disability

‘The first step is to talk openly about dementia’

From the [UK] Telegraph:

Best-selling author Terry Pratchett is urging greater awareness of Alzheimer’s disease, and says that discussing “the demon” is the only way to kill it. His remarks came at the launch of a new campaign by the Alzheimer’s Society to reverse stigma associated with dementia.

Pratchett, creator of the multi-million selling Discworld fantasy novels, was diagnosed with early onset Alzheimer’s last year and has donated £1 million to research into the disease.

“It’s a strange life when you ‘come out’ — people get embarrassed, lower their voices and get lost for words,” he said.

A report by the Alzheimer’s Society found that  people with Alzheimer’s were being left isolated and even having their diagnosis delayed as friends, relatives and doctors avoided discussing the disease.

From the New York Times:

Heba Said Ahmed (left) won a gold medal for power lifting at the recent Paralympic Games in Beijing, and broke a world record.

But when she left Beijing and returned home to Egypt, Ahmed once again faced a society that views her as a second-class citizen because she cannot walk, a disability caused by a childhood bout of polio. An excerpt:

“I want to prove to society that I am better than what they think of me,” she said. “In Egypt, they think a handicapped person should just stay in bed.”

It is hard to overstate how different Ms. Ahmed is from many of those around her. It is all about attitude. Egypt is filled with people who face adversity, most often a function of poverty and systemic indifference. It is a class-based society with an unwritten contract that many people believe condemns them to live as they were born, poor and marginalized. There is a pervasive feeling of impotence, a collective belief that fighting back is futile.

But Ms. Ahmed never refers to fate; she talks about choices. She does not talk about obstacles; she talks about challenges.

… “There is no such thing as a handicap,” she said. “A handicap is in your thinking, or in your heart.”

From the Boston Globe, Colorado Springs Gazette and elsewhere:

Diana Chavez and Luis Herrera (at left) were among the protesters in Colorado Springs as members of the National Federation of the Blind picketed the opening of the film “Blindness” on Friday.

In addition to Colorado springs, there were news reports of protests in Boston, Des Moines; Denver;  Jacksonville, Florida; Rochester, Minnesota; Asheville, North Carolina; Dayton, Ohio; and elsewhere. Organizers said picketing was planned for 78 locations in 38 states.

Protesters handed out fliers and carried signs proclaiming the film a “travesty” and saying that “Stereotypes are the real evil.”

The film, which stars Julianne Moore, depicts a society  that is hit by an epidemic of blindness; chaos and depravity result. Protesters said the movie exacerbates stereotypes and stokes public fears.

“The difficulty of being blind comes from this low expectation of people who are blind,” said Mika Pyyhkala, who protested in Boston. “That causes more problems than any technical or direct blindness. This movie doesn’t portray the reality of what it’s like.”

See also:

Blind critics of film seem unenlightened – by Pete McMartin in the Vancouver Sun

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From the Jackson, TN, Sun:

Residents of North Madison County in Tennessee have organized in opposition to a proposal to build group homes there for people with developmental disabilities, arguing that the homes would drive down property values and bring undesirable people into their neighborhoods.

The homes are planned to replace an aging, institutional-style facility that is being closed in the wake of a federal lawsuit over the treatment of people with disabilities in the state.

Related op-ed: Developmentally disabled have rights, just like everybody else — By Peter Watson. An excerpt:

To me, the issue is, do these people have a right to live in a decent home in a decent neighborhood? To me, the answer is yes.

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See the original here.

By Patricia E. Bauer

Just when you think you’ve heard it all, people come up with some new ones. Questions, that is — about Sarah Palin’s baby son, Trig Paxson Van Palin, who has Down syndrome (at left with sister Piper at the Republican National Convention). Here are answers to some common questions.

1)  Down syndrome — that’s really bad, right? Doesn’t that mean he’s sickly and won’t live very long?

First of all, let’s think about this baby as just that — a baby. People with Down syndrome vary widely, and each has a unique personality, temperament, and combination of strengths and challenges. We haven’t been told anything about Trig’s health status yet, except that he has Down syndrome.

In general, people with Down syndrome have some degree of mild to moderate intellectual disability and have a higher risk for a variety of health problems, particularly heart trouble. At the same time their life expectancies have increased dramatically, from an average of about 9 years in the 1920s, to something reaching into the 60s today. (See my post here on Bert Holbrook Jr. of Waseca County, Minnesota, who just celebrated his 80th birthday.)

As recently as the 1960s, people didn’t know that people with Down syndrome were capable of learning, and sent them to institutions where they were most often neglected or abused. Most of the very negative images about them, and the worst health outcomes, date from that time.

With the improvements in education and health care of the last few decades, it’s not unreasonable to expect that children with Down syndrome born today can enjoy full, rich lives, form satisfying relationships, and gain skills that will allow them to work and make positive contributions to their families and communities.

2) If Palin opposes abortion rights, as she says, why did she have an amnio? Wasn’t that a waste of money?

Many women who oppose abortion nonetheless have prenatal testing so they can get information that may be useful in planning for their baby’s delivery and care. Gov. Palin has said she was glad to receive Trig’s diagnosis before he was born so she could learn about Down syndrome and come to terms with her son’s disability before she met him.

3) Ninety percent of American women who get a prenatal diagnosis of Down syndrome get an abortion. Doesn’t that prove people with Down syndrome have terrible lives?

Actually, no. People with Down syndrome are valued, valuable and contributing members of happy families. Their families report deep attachment to their children, and are saddened by those abortion statistics. Family members attribute the numbers to widespread public ignorance about people with Down syndrome; doctors who lack current information and aren’t well-trained to deliver prenatal diagnoses; lingering fears and stigma left over from the days when these people were institutionalized under horrible conditions; and unrealistic desires for the “perfect child.” See also this post.

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