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	<title>Disability News &#124; PatriciaEBauer.com &#187; quality of life</title>
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	<description>Disability News &#124; PatriciaEBauer.com</description>
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		<title>Op-ed: Daughter is &#8216;worth every tear&#8217;</title>
		<link>http://www.patriciaebauer.com/2010/05/05/daughter-worth-every-tear-29543/</link>
		<comments>http://www.patriciaebauer.com/2010/05/05/daughter-worth-every-tear-29543/#comments</comments>
		<pubDate>Wed, 05 May 2010 16:20:03 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[commentary]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[quality of life]]></category>
		<category><![CDATA[trisomy 18]]></category>
		<category><![CDATA[disabiity news and commentary]]></category>
		<category><![CDATA[intellectual disability]]></category>
		<category><![CDATA[prenatal testing]]></category>
		<category><![CDATA[Rick Santorum]]></category>

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		<description><![CDATA[Rick Santorum, former Republican senator from Pennsylvania and Fox News contributor, celebrates his daughter&#8217;s second birthday with an op-ed in the Philadelphia Inquirer. Isabella has Trisomy 18, and has survived despite the dire predictions of doctors and experts. Santorum says Bella&#8217;s life may not be long, but &#8220;she is worth every tear.&#8221; An excerpt: Being [...]]]></description>
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		<slash:comments>1</slash:comments>
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		<title>Controversial advocate with Asperger&#8217;s nominated to federal post</title>
		<link>http://www.patriciaebauer.com/2010/01/05/ari-neeman-ncd-26913/</link>
		<comments>http://www.patriciaebauer.com/2010/01/05/ari-neeman-ncd-26913/#comments</comments>
		<pubDate>Tue, 05 Jan 2010 20:18:31 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[advocacy]]></category>
		<category><![CDATA[Asperger's]]></category>
		<category><![CDATA[autism]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[quality of life]]></category>
		<category><![CDATA[research news]]></category>
		<category><![CDATA[Ari Ne'eman]]></category>
		<category><![CDATA[Autism Self-Advocacy Network]]></category>
		<category><![CDATA[Autism Speaks]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[National Council on Disability]]></category>

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		<description><![CDATA[From the Newark Star-Ledger: Ari Ne&#8217;eman, a 22-year-old man with Asperger&#8217;s syndrome, has been nominated by the president to sit on the National Council on Disability. Ne&#8217;eman&#8217;s appointment has been criticized by some autism advocates who say he is &#8220;not quite autistic enough.&#8221; He is the first person with autism to be nominated for a [...]]]></description>
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		<slash:comments>1</slash:comments>
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		<title>Federal watchdog: Health care failing those with disabilities</title>
		<link>http://www.patriciaebauer.com/2009/10/01/health-care-reform-23284/</link>
		<comments>http://www.patriciaebauer.com/2009/10/01/health-care-reform-23284/#comments</comments>
		<pubDate>Fri, 02 Oct 2009 04:32:05 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[health care]]></category>
		<category><![CDATA[medicine]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[Obama administration]]></category>
		<category><![CDATA[public health]]></category>
		<category><![CDATA[quality of life]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[National Council on Disability]]></category>

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		<description><![CDATA[From a press release from the National Council on Disability: People with disabilities face significant barriers to health care and are in need of immediate health care reform, according to a federal report released yesterday. The report by the National Council on Disability found that people with disabilities frequently lack health insurance or coverage for necessary [...]]]></description>
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		<slash:comments>1</slash:comments>
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		<title>Spinal cord activist shifts focus from cure to care</title>
		<link>http://www.patriciaebauer.com/2009/09/25/paralysis-22951/</link>
		<comments>http://www.patriciaebauer.com/2009/09/25/paralysis-22951/#comments</comments>
		<pubDate>Fri, 25 Sep 2009 17:01:25 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[advocacy]]></category>
		<category><![CDATA[insurance]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[paralysis]]></category>
		<category><![CDATA[quality of life]]></category>
		<category><![CDATA[Alan T. Brown]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[quadriplegic]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=22951</guid>
		<description><![CDATA[&#8216;I feel like I&#8217;ve lied to a lot of people&#8217; From Newsweek (with video): Alan T. Brown, who is quadriplegic as the result of an injury, has spent the last two decades trying to find a cure for people who are paralyzed. Now he&#8217;s changed his emphasis, working toward improving medical care, insurance coverage and [...]]]></description>
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		<slash:comments>2</slash:comments>
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		<title>Researchers: Riding a bike can offer lasting benefits</title>
		<link>http://www.patriciaebauer.com/2009/07/22/riding-a-bike-20474/</link>
		<comments>http://www.patriciaebauer.com/2009/07/22/riding-a-bike-20474/#comments</comments>
		<pubDate>Wed, 22 Jul 2009 17:45:27 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[autism]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[exercise/sports]]></category>
		<category><![CDATA[independent living]]></category>
		<category><![CDATA[quality of life]]></category>
		<category><![CDATA[research news]]></category>
		<category><![CDATA[bike camp]]></category>
		<category><![CDATA[Dale Ulrich]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[University of Michigan]]></category>

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		<description><![CDATA[From the Detroit News: Researchers at the University of Michigan say children with autism and Down syndrome who learn to ride two-wheeled bikes are more likely to stay physically active, leading to many health benefits. The research, which focuses on a five-day bike camp, is funded by the U.S. Department of Education. Lead researcher Dale [...]]]></description>
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		<slash:comments>2</slash:comments>
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		<title>Peter Singer: &#8216;We must ration health care&#8217;</title>
		<link>http://www.patriciaebauer.com/2009/07/16/peter-singe-20219/</link>
		<comments>http://www.patriciaebauer.com/2009/07/16/peter-singe-20219/#comments</comments>
		<pubDate>Thu, 16 Jul 2009 21:54:00 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[health care]]></category>
		<category><![CDATA[quality of life]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Peter Singer]]></category>
		<category><![CDATA[QALY]]></category>
		<category><![CDATA[rationing]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=20219</guid>
		<description><![CDATA[Writing for this weekend&#8217;s New York Times Magazine, philosopher Peter Singer argues for rationing health care. He says rationing is already taking place &#8212; we deny treatment to those who can&#8217;t pay &#8212; and it must be formalized within public insurance plans like Medicaid because the public can ill afford to pay limitless prices for [...]]]></description>
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		<slash:comments>10</slash:comments>
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		<title>&#8216;He got off the motorcycle and proceeded to show us card tricks&#8230;&#8217;</title>
		<link>http://www.patriciaebauer.com/2009/07/11/motorcycle-card-tricks-20010/</link>
		<comments>http://www.patriciaebauer.com/2009/07/11/motorcycle-card-tricks-20010/#comments</comments>
		<pubDate>Sat, 11 Jul 2009 15:30:33 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[business]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[public attitudes]]></category>
		<category><![CDATA[quality of life]]></category>
		<category><![CDATA[success stories]]></category>
		<category><![CDATA[wheelchair]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[magic]]></category>
		<category><![CDATA[national public radio]]></category>
		<category><![CDATA[Patty Barber]]></category>
		<category><![CDATA[Ricky Boone]]></category>
		<category><![CDATA[StoryCorps]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=20010</guid>
		<description><![CDATA[From the StoryCorps oral history project on National Public Radio: Ricky Boone, a magician and owner of a magic shop in Asheville, NC, tells his friend Patty Barber about the teacher who transformed his life. Boone was born with a rare bone disorder that stunted his growth and limited his mobility. He says he spent [...]]]></description>
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		<slash:comments>2</slash:comments>
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		<item>
		<title>Parents, health workers differ &#8216;significantly&#8217; on ill babies</title>
		<link>http://www.patriciaebauer.com/2009/06/15/health-attitudes-preterm-18473/</link>
		<comments>http://www.patriciaebauer.com/2009/06/15/health-attitudes-preterm-18473/#comments</comments>
		<pubDate>Mon, 15 Jun 2009 18:37:02 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[health care]]></category>
		<category><![CDATA[medicine]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[parents]]></category>
		<category><![CDATA[quality of life]]></category>
		<category><![CDATA[research news]]></category>
		<category><![CDATA[attitudes]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[infants]]></category>
		<category><![CDATA[Pediatrics]]></category>
		<category><![CDATA[premature]]></category>
		<category><![CDATA[preterm]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=18473</guid>
		<description><![CDATA[A study in the current issue of Pediatrics reports that parents of premature infants place a &#8216;significantly&#8217; higher value on their children&#8217;s lives, regardless of disability, than do health care workers who are involved in neonatal care decision-making. Most health care workers surveyed said that having multiple disabilities is worse than death, whereas most parents [...]]]></description>
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		<slash:comments>0</slash:comments>
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		<item>
		<title>He worries: Could genetic testing eliminate people with autism?</title>
		<link>http://www.patriciaebauer.com/2009/05/18/ari-neeman-16663/</link>
		<comments>http://www.patriciaebauer.com/2009/05/18/ari-neeman-16663/#comments</comments>
		<pubDate>Mon, 18 May 2009 16:24:34 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[advocacy]]></category>
		<category><![CDATA[Asperger's]]></category>
		<category><![CDATA[autism]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[ethics]]></category>
		<category><![CDATA[eugenics]]></category>
		<category><![CDATA[genetic diversity]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[quality of life]]></category>
		<category><![CDATA[Ari Ne-eman]]></category>
		<category><![CDATA[genetic testing]]></category>
		<category><![CDATA[prenatal testing]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=16663</guid>
		<description><![CDATA[Newsweek magazine profiles Ari Ne&#8217;eman, the 21-year-year-old founder of the nonprofit Autistic Self-Advocacy Network. Ne&#8217;eman is a master networker who wants to convince the world that autism is not a medical mystery that needs to be cured, but rather a type of &#8220;neurodiversity&#8221; that should be accepted by society. Ne&#8217;eman, who has Asperger&#8217;s syndrome, is [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2009/05/18/ari-neeman-16663/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<item>
		<title>Michael J. Fox pairs optimism, Parkinson&#8217;s</title>
		<link>http://www.patriciaebauer.com/2009/05/04/fox-parkinsons-15564/</link>
		<comments>http://www.patriciaebauer.com/2009/05/04/fox-parkinsons-15564/#comments</comments>
		<pubDate>Mon, 04 May 2009 13:33:16 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[books]]></category>
		<category><![CDATA[celebrities]]></category>
		<category><![CDATA[parkinson's]]></category>
		<category><![CDATA[quality of life]]></category>
		<category><![CDATA[television]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Michael J. Fox]]></category>
		<category><![CDATA[optimism]]></category>

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		<description><![CDATA[From the Washington Post: Michael J. Fox appears this week in an hour-long special exploring what makes a person an optimist.  The actor has remained mostly upbeat and positive since publicly disclosing his Parkinson&#8217;s diagnosis in 1998. &#8220;I feel that whatever hardships or losses I&#8217;ve had as a result of the Parkinson&#8217;s are far outweighed [...]]]></description>
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		<slash:comments>0</slash:comments>
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