‘Rare disease, rarer minds’
Monday, September 29th, 2008From the Pittsburgh Post-Gazette:
Henry deYoung, 23, was named Carnegie Mellon’s top undergraduate computer science student last spring, and is now enrolled in the school’s Ph.D. program. His younger brother Andrew, 21, also a student at Carnegie Mellon, is just as brilliant. They both have spinal muscular atrophy, a muscle-weakening disorder.
Technically, they’ve already outlived their expected lifespan, but they don’t dwell on it. They’re not expecting a cure. An excerpt:
“I think one’s circumstances affect one’s life, and I think it’s helpful if I and others remember that, and know that really, circumstances are just circumstances, not necessarily bad,” Andrew DeYoung wrote in an e-mail.
“In other words, we all need to remember that every person has value, not because of what we do, but just because we are. And it doesn’t matter whether one is president of the United States or is one of the dozens of sick children waiting right now at Children’s Hospital for a transplant — I think that if we all remembered that we all have value, life would be a bit more pleasant, and less goal-oriented.”






