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	<title>Disability News &#124; PatriciaEBauer.com &#187; patients</title>
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		<title>Couple faces end of battle over death of baby with Trisomy 13</title>
		<link>http://www.patriciaebauer.com/2009/06/22/baby-annie-18923/</link>
		<comments>http://www.patriciaebauer.com/2009/06/22/baby-annie-18923/#comments</comments>
		<pubDate>Mon, 22 Jun 2009 15:41:12 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[discrimination]]></category>
		<category><![CDATA[end of life]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[hospitals]]></category>
		<category><![CDATA[human rights]]></category>
		<category><![CDATA[intellectual/developmental disabilities]]></category>
		<category><![CDATA[law]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[parents]]></category>
		<category><![CDATA[patients]]></category>
		<category><![CDATA[Barbara Farlow]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Ontario Superior Court]]></category>
		<category><![CDATA[Toronto]]></category>
		<category><![CDATA[Toronto's Hospital for Sick Children]]></category>
		<category><![CDATA[Trisomy 13]]></category>

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		<description><![CDATA[From the [Toronto, Canada] National Post: Barbara Farlow and her husband Timothy are facing what is expected to be the end of their legal challenge to Toronto&#8217;s Hospital for Sick Children over the 2005 death of their daughter Annie, who had Trisomy 13. If a judge rules today that the case cannot be heard in [...]]]></description>
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		<title>Parents: Ontario hospital withheld treatment from disabled girl</title>
		<link>http://www.patriciaebauer.com/2009/04/15/withheld-treatment-14445/</link>
		<comments>http://www.patriciaebauer.com/2009/04/15/withheld-treatment-14445/#comments</comments>
		<pubDate>Thu, 16 Apr 2009 02:06:20 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[end of life]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[health care]]></category>
		<category><![CDATA[hospitals]]></category>
		<category><![CDATA[human rights]]></category>
		<category><![CDATA[intellectual/developmental disabilities]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
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		<category><![CDATA[patients]]></category>
		<category><![CDATA[Annie Farlow]]></category>
		<category><![CDATA[Barbara Farlow]]></category>
		<category><![CDATA[Canada]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Hospital for Sick Children]]></category>
		<category><![CDATA[Jason Wallace]]></category>
		<category><![CDATA[Kaylee Wallace]]></category>
		<category><![CDATA[Tim Farlow]]></category>
		<category><![CDATA[Toronto]]></category>
		<category><![CDATA[Trisomy 13]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=14445</guid>
		<description><![CDATA[From the Toronto [Ontario] Star, Global News Canada: The parents of Annie Farlow, an infant who died at an Toronto hospital in 2005, are pressing a claim before the Ontario Human Rights Tribunal alleging that their daughter received inadequate care because the hospital withholds life-saving treatment from infants with disabilities. Barbara and Tim Farlow say [...]]]></description>
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		<slash:comments>0</slash:comments>
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		<title>Doctors reluctant to treat adults with disabilities, Arc study finds</title>
		<link>http://www.patriciaebauer.com/2009/02/02/adult-medical-care-8915/</link>
		<comments>http://www.patriciaebauer.com/2009/02/02/adult-medical-care-8915/#comments</comments>
		<pubDate>Mon, 02 Feb 2009 12:56:51 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[advocacy]]></category>
		<category><![CDATA[health care]]></category>
		<category><![CDATA[insurance]]></category>
		<category><![CDATA[intellectual/developmental disabilities]]></category>
		<category><![CDATA[medicine]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[patients]]></category>
		<category><![CDATA[personal stories]]></category>
		<category><![CDATA[public attitudes]]></category>
		<category><![CDATA[research news]]></category>
		<category><![CDATA["Left Out in the Cold]]></category>
		<category><![CDATA[ARC]]></category>
		<category><![CDATA[developmental disabilities]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[doctors]]></category>
		<category><![CDATA[internists]]></category>
		<category><![CDATA[Leo Sarkissian]]></category>
		<category><![CDATA[Massachusetts]]></category>
		<category><![CDATA[pediatricians]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=8915</guid>
		<description><![CDATA[&#8216;Left out in the cold&#8217; says MDs&#8217; attitudes pose barrier to health care access From the Boston Globe: A new study by the Arc of Massachusetts finds that many disabled adults face long waits finding medical care and thus aren&#8217;t treated properly for common adult conditions. Among other reasons, the report said that many internists [...]]]></description>
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		<slash:comments>2</slash:comments>
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		<title>Debate rages over use of the word &#8216;retard&#8217; in &#8216;Tropic Thunder&#8217;</title>
		<link>http://www.patriciaebauer.com/2008/08/15/retard-debate-raging-2954/</link>
		<comments>http://www.patriciaebauer.com/2008/08/15/retard-debate-raging-2954/#comments</comments>
		<pubDate>Fri, 15 Aug 2008 12:12:52 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[advocacy]]></category>
		<category><![CDATA[entertainment]]></category>
		<category><![CDATA[intellectual/developmental disabilities]]></category>
		<category><![CDATA[media]]></category>
		<category><![CDATA[movies]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[patients]]></category>
		<category><![CDATA[public attitudes]]></category>
		<category><![CDATA[Tropic Thunder]]></category>
		<category><![CDATA[Ben Stiller]]></category>
		<category><![CDATA[boycott]]></category>
		<category><![CDATA[David Tolleson]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Eddie Barbanell]]></category>
		<category><![CDATA[Gitesh Pandya]]></category>
		<category><![CDATA[National Down Syndrome Congress]]></category>
		<category><![CDATA[Tim Shriver]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=2954</guid>
		<description><![CDATA[(Photo from Hartford Courant) Lots more about the continuing &#8220;Tropic Thunder&#8221; controversy. We&#8217;ll be following it throughout the day. Let&#8217;s start here. Stiller defends &#8220;Thunder&#8221; on the CBS Early Show. With video. Stiller says the movie is a comedy, and that people should view it in context and lighten up. (Note: Robert Downey Jr. also [...]]]></description>
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		<slash:comments>3</slash:comments>
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		<title>Do doctors assume the worst about people with disabilities?</title>
		<link>http://www.patriciaebauer.com/2008/01/09/a-doctor-reflects-why-do-we-assume-the-worst-about-people-with-disabilities-1207/</link>
		<comments>http://www.patriciaebauer.com/2008/01/09/a-doctor-reflects-why-do-we-assume-the-worst-about-people-with-disabilities-1207/#comments</comments>
		<pubDate>Wed, 09 Jan 2008 23:29:16 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[cancer]]></category>
		<category><![CDATA[medicine]]></category>
		<category><![CDATA[patients]]></category>
		<category><![CDATA[personal stories]]></category>
		<category><![CDATA[public attitudes]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/2008/01/09/a-doctor-reflects-why-do-we-assume-the-worst-about-people-with-disabilities/</guid>
		<description><![CDATA[A thought-provoking piece by Ann-Marie Rosland, MD, in the Journal of the American Medical Association (subscription or $15 purchase required): Dr. Rosland tells the story of her &#8220;aunt Jean,&#8221; who was not offered chemotherapy when she was diagnosed with metastatic colon cancer. Instead, the oncologist proposed only that she be kept as comfortable as possible. [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2008/01/09/a-doctor-reflects-why-do-we-assume-the-worst-about-people-with-disabilities-1207/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>Cancer survivors find support</title>
		<link>http://www.patriciaebauer.com/2007/11/14/cancer-survivors-find-support-805/</link>
		<comments>http://www.patriciaebauer.com/2007/11/14/cancer-survivors-find-support-805/#comments</comments>
		<pubDate>Wed, 14 Nov 2007 16:30:36 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[advocacy]]></category>
		<category><![CDATA[chronic illness]]></category>
		<category><![CDATA[patients]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/2007/11/14/cancer-survivors-find-support/</guid>
		<description><![CDATA[By Laura Landro in the Wall Street Journal (registration required): As the ranks of cancer survivors grow to more than 10 million in the U.S., so does concern that medical providers aren&#8217;t doing enough to link patients and families to resources they need to face the physical and psychological effects of cancer &#8212; from fatigue [...]]]></description>
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		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Self-advocate: Autistics can thrive by knowing themselves</title>
		<link>http://www.patriciaebauer.com/2007/11/03/self-advocate-autistics-can-thrive-by-knowing-themselves-724/</link>
		<comments>http://www.patriciaebauer.com/2007/11/03/self-advocate-autistics-can-thrive-by-knowing-themselves-724/#comments</comments>
		<pubDate>Sat, 03 Nov 2007 23:51:05 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[autism]]></category>
		<category><![CDATA[patients]]></category>
		<category><![CDATA[public attitudes]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/2007/11/03/self-advocate-autistics-can-thrive-by-knowing-themselves/</guid>
		<description><![CDATA[From the Ottowa Citizen:Self-advocate Stephen Shore, speaking at an autism conference, says society should value people with autism for their gifts and abilities. He said it is unproductive for parents to deny their children&#8217;s diagnosis. Related story in the Toronto Globe and Mail: &#8216;Autistics&#8217;: We don&#8217;t want a cure. Parents of children with autism are [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2007/11/03/self-advocate-autistics-can-thrive-by-knowing-themselves-724/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<title>USC law professor tells of journey through mental illness</title>
		<link>http://www.patriciaebauer.com/2007/09/11/usc-law-professor-tells-of-journey-through-mental-illness-353/</link>
		<comments>http://www.patriciaebauer.com/2007/09/11/usc-law-professor-tells-of-journey-through-mental-illness-353/#comments</comments>
		<pubDate>Tue, 11 Sep 2007 15:52:39 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[mental health]]></category>
		<category><![CDATA[patients]]></category>
		<category><![CDATA[personal stories]]></category>
		<category><![CDATA[stigma]]></category>
		<category><![CDATA[success stories]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/2007/09/11/usc-law-professor-tells-of-journey-through-mental-illness/</guid>
		<description><![CDATA[&#8216;Thanks to medication and therapy, Elyn Saks has the upper hand on schizophrenia.&#8217; From a front-page feature in the Los Angeles Times. USC law professor Elyn Saks has decided it&#8217;s time to go public with her personal experiences as a person with mental illness. The result: a memoir called &#8220;The Center Cannot Hold: My Journey [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2007/09/11/usc-law-professor-tells-of-journey-through-mental-illness-353/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>Patients, it&#8217;s time to unionize</title>
		<link>http://www.patriciaebauer.com/2007/08/15/patients-its-time-to-unionize-174/</link>
		<comments>http://www.patriciaebauer.com/2007/08/15/patients-its-time-to-unionize-174/#comments</comments>
		<pubDate>Thu, 16 Aug 2007 02:11:30 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[chronic illness]]></category>
		<category><![CDATA[medicine]]></category>
		<category><![CDATA[patients]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/2007/08/15/patients-its-time-to-unionize/</guid>
		<description><![CDATA[USA Today columnist Robert Lipsyte argues it&#8217;s time for patients to create a cohesive group &#8212; he calls it a union &#8212; to advocate on their behalf. He laments the fact that sick people and their caregivers have traditionally been fragmented not only by age, race, gender, class and money but also by their diseases. [...]]]></description>
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		<slash:comments>0</slash:comments>
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		<item>
		<title>Hospitals boost  the power of patients and their families</title>
		<link>http://www.patriciaebauer.com/2007/08/08/hospitals-boost-the-power-of-patients-and-their-families-141/</link>
		<comments>http://www.patriciaebauer.com/2007/08/08/hospitals-boost-the-power-of-patients-and-their-families-141/#comments</comments>
		<pubDate>Wed, 08 Aug 2007 16:59:51 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[families]]></category>
		<category><![CDATA[hospitals]]></category>
		<category><![CDATA[medicine]]></category>
		<category><![CDATA[patients]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/2007/08/08/hospitals-boost-the-power-of-patients-and-their-families/</guid>
		<description><![CDATA[Writing in the Wall Street Journal, columnist Laura Landro explores efforts by hospitals to create patient and family advisory councils. After years of confining outreach efforts to the occasional focus group on decor or food service, hospitals are striking far-reaching new partnerships with patients and their families, creating advisory councils whose members help plan new [...]]]></description>
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		<slash:comments>0</slash:comments>
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