Disability news, Accessibility Issues, Disability Issues, Accessiblity News

Archive for the ‘newborn screening’ Category

Newborn screening for cystic fibrosis debuts in Alabama, Ontario

Saturday, April 19th, 2008

From the Birmingham [Alabama] News,

Starting this week, all newborns in Alabama will be tested for cystic fibrosis, and health officials are hoping that early identification will lead to early treatment and better outcomes for children. The test for the genetic disorder had been in the works for some time, but was held up until the state assured that it had adequate capacity to provide testing in its cystic fibrosis centers in Birmingham and Mobile.

The screening should identify about 250 to 300 babies in the state annually who are at least carriers of the disease. Doctors expect further testing at one of the cystic fibrosis centers to find about 25 to 30 new cases of the disease each year. Parents of babies who are carriers but do not have the disease will be consulted about genetic testing for future pregnancies.

From the Windsor [Ontario] Star:

All babies born in Ontario will now be screened for CF.

The Canadian Cystic Fibrosis Foundation applauded the move, saying diagnosing and treating CF before symptoms emerge can improve life expectancy for people with CF and help them live more productive lives.

Ontario is the second Canadian province, after Alberta, to offer CF screening for newborns. British Columbia and Saskatchewan are also looking into making the screening available.

Newborn screening bill passes House and Senate

Tuesday, April 15th, 2008

From Kaisernetwork.org, CQ.com and the Buffalo [NY] News:

The House voted to approve legislation that would authorize $44.5 million in fiscal year 2008 for programs to detect congenital, genetic and metabolic disorders in newborns. The measure also would require HHS to create and maintain an information clearinghouse to support families with children diagnosed with the conditions.

The Senate earlier approved a similar version of the bill.

About the Blog

More than 50 million people in the United States have disabilities, a number that is growing rapidly as the population ages. Experts say disability will soon affect the lives of most Americans. This blog attempts to explore what we know about disability, and to chronicle the efforts of people who are seeking new ways to address familiar challenges.

Join journalist Patricia E. Bauer as she sifts through current news and commentary, bringing you the best information about what's happening now and what it may mean for you and your loved ones.

Read More »

Search

Categories

Read More »

Election 2008

Read More »

Not2BeMissed

Read More »

My Articles & Essays

Read More »

FAQs

Headlines

Read More »

Tropic Thunder

Read More »

News2Use

Read More »

Mailing List

Sign up for our mailing list!





RSS Our RSS Feed



Archives
  • December 2008
  • November 2008
  • October 2008
  • September 2008
  • August 2008
  • July 2008
  • June 2008
  • May 2008
  • April 2008
  • March 2008
  • February 2008
  • January 2008
  • December 2007
  • November 2007
  • October 2007
  • September 2007
  • August 2007
  • July 2007
  • June 2007
  • May 2007