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Archive for the ‘marriage’ Category

‘Monica & David’ takes Tribeca’s top documentary honors

Friday, April 30th, 2010

From the BBC, Washington Post, Miami Herald:

Monica & David, a documentary about the romance and marriage of two young adults with Down syndrome, has won the top documentary prize at the prestigious Tribeca Film Festival.

The film was directed by the female subject’s cousin, Miami’s Alexandra Codina, and was chosen from among 30 documentaries to receive a $25,000 prize.  It is scheduled to premiere on HBO in October.

From the jury’s statement:

Monica & David takes an incredibly intimate situation and beautifully translates it in a way that makes you think about your own life. It’s a clear and observant look at a family and the purity of love, fueled by an organic sense of the sadness, joy and everyday humor that fill this epic journey that is life.”

An excerpt from the festival’s program notes:

… an intimate, year-in-the-life portrait of two childlike spirits with adult desires as they prepare for their fairy tale wedding and face the realities of married life afterward. Taking immense pride in their new roles as husband and wife, David wants to bring home the bacon, and Monica wants to fry it in the pan. They want babies of their own. But their unique circumstances still have them living with Monica’s mother and husband. How will this unique family face its challenges and move forward?

… along with their story is one of two different mothers who sacrificed and struggled against an intolerant world to provide for their children.

The official trailer is here.

Columnist: ‘Sadly, most people with a learning disability should not have children’

Sunday, November 22nd, 2009

Minette Marrin, Sunday Times photoMinette Marrin, writing in the [UK] Sunday Times, reacts to a BBC2 documentary about a couple with Down syndrome who are deciding whether to marry. Marrin’s sister has an intellectual disability. An excerpt:

It is hard enough to be an adequate parent with supposedly normal intelligence. For someone of very low intelligence it is even harder. That is presumably why so many – 50%-60% – of babies born to parents with learning disabilities are taken away by social workers, a horrifying thing but arguably, in many cases, the least worst thing to do.

… I hate to be someone who thinks social workers may be right, sometimes, in removing a child from parents with learning disabilities. I hate to be someone who thinks it is unwise and unfair to encourage people with LDs to have babies and I certainly wouldn’t attempt to stop anyone. But wishful thinking is sometimes at odds with a sense of responsibility, as I think Emma and Ben came to feel. There are some things in life that all the love you have cannot change and cannot make better.

Related post: Pregnant woman with learning disabilities flees to keep baby

Documentary asks ‘Can we get married?’

Sunday, November 22nd, 2009

Emma and Ben, BBC2 photo in the [UK] TimesA documentary on BBC2′s “Wonderland” series, follows Emma Bishop and Ben Marshall, two young adults in England who have been together for six years and are very much in love. Both have Down syndrome.

They want to wed, but face complications from their parents and from the benefits system. “The thing with having Down syndrome is that sometimes you’re not treated like an adult,” explained Emma. “And people don’t listen to what you say.”

In the [UK] Independent, reviewer Alice-Azania Jarvis says the work is “a moving, striking and insightful film…, not to mention one, which, hopefully will work towards changing the attitudes Emma mentioned.”

Lucy Mangan, writing in the [UK] Guardian, called the documentary a “slight film” that fails to consider the broader context of “the difficulties of reconciling adult human rights with childlike vulnerabilities.” Still, she says, the film was valuable for providing “a nuanced portrait of two people leading the kind of lives rarely seen at length on the screen.”

Pregnant woman with learning disabilities flees to keep baby

Sunday, November 22nd, 2009

Kerry Robertson and Mark McDougall, photo from the [UK] TimesFrom the  [UK] Daily Mail, [UK] Times:

A pregnant woman with learning disabilities and her fiance have reportedly fled Scotland after social workers threatened to take away their baby at birth, saying the woman was not capable of raising the child.

Two months ago, the couple’s wedding was halted 48 hours before the ceremony in a dispute over whether Kerry Robertson, 17, was capable of consenting to marry Mark McDougall, 25.

The high-profile case highlights the dilemma facing social workers who must both protect the welfare of babies and vulnerable adults with disability, but at the same time protect the rights of those adults to lead fulfilled lives.

Mr. McDougall told a newspaper that he and his fiancée decided to leave Scotland after they saw the minutes of a meeting in which social workers claimed their child could suffer emotional harm if left with Miss Robertson.

GAO finds wide abuse in discipline of students with disabilities

Tuesday, May 19th, 2009

From CNN, National Public Radio, CBS News, and USA Today:

The Government Accountability Office, the investigative arm of Congress, is releasing a report today which documents the widespread abuse of techniques used to restrain or discipline students with disabilities in both public and private schools across the country.

The GAO report will be considered by the House Education and Labor Committee, which today is holding hearings about restraints and seclusion techniques. The committee is considering new laws to govern what actions teachers can take to discipline students with disabilities. (A live webcast of the hearings can be seen here. Written testimony is being posted on the committee’s webpage here as it is given.)

“I think what we’re going to hear from the GAO is that very often, special-need children are subjected to the policies of seclusion and policies of restraint that have turned out to be lethal in a number of circumstances,” said Rep. George Miller, D-California, the committee’s chairman.

Some cases include the use of face-down restraints; the use of seclusion rooms for hours to discipline children as young as 6 years old; and death or injuries that have occurred after children have been tied, taped, handcuffed or pinned down by adults.

Earlier posts here.

Massachusetts budget cuts threaten disability services

Tuesday, May 19th, 2009

From the Boston Globe:

Three sisters with a rare degenerative brain disease are among 21,000 people who will lose crucial services if the Massachusetts legislature approves a proposal to cut $100 million in budget cuts. The Arc of Massachusetts has planned a protest rally at the State House this morning.

Jillian, Lindsey and Kelsey Burke would lose the recreational, respite and family support services that have kept the Burke family afloat.

A spokeswoman for the state Department of Developmental Services said shrinking revenues forced the department to take the “difficult step” of eliminating funding for family support services.  “Of course no agency wants to be in a position to need to make these types of cuts, but fiscal realities required that we make some very difficult decisions,” she said.

Man with Asperger’s says wife figured out diagnosis

Monday, May 18th, 2009

Writing the New York Times’ Modern Love column, David Finch says his “facade of semi-normalcy” fell away in the third year of marriage, revealing someone “cynical and withdrawn, obsessive and preoccupied, dismissive and unhelpful.” His wife, a speech pathologist who works with autistic children, had her suspicions, but it took two more years before she was able to tell him he had Asperger’s syndrome.

Finch credits his wife with helping him develop empathy and other adaptive behaviors.

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