From the [UK] Times, [UK] Telegraph, Reuters, [UK] Daily Mail, [UK] Guardian:
A study in the current issue of the British Medical Journal says the number of reported Down syndrome pregnancies in England and Wales has increased more than 70 percent over the past twenty years as women postpone childbearing.
But the number of births of infants with the condition has dropped by one percent over the same time period because more than 90 percent of such pregnancies diagnosed prenatally were terminated, researchers found.
Lead researcher Joan Morris, professor of medical statistics at Queen Mary, University of London, said more research was needed to find out why about 30 per cent of older women decide not to be tested. “It is important to ascertain whether the decision is an informed one and, if not, to address the lack of information,” she said.
Frank Buckley, chief executive of Down Syndrome Education International, called the findings “a wake-up call to policy-makers to focus more effort on improving education, healthcare and adult support for the rapidly growing population of citizens who have Down syndrome.”
Related post: Article: Will babies with Down syndrome slowly disappear?
See also:
Women’s choices on Down syndrome screening must be informed ones — By Carol Boys, [UK] Times. Boys urges that families undergoing the screening process be given non-directive counseling and accurate, up-to-date information about Down syndrome.
Actually, having a child with Down syndrome is no big deal — By Simon Barnes, [UK] Times
Belinda Benton: I had healthy baby despite Down’s syndrome risk – [UK] Telegraph
‘Down’s is still stigmatized’ — BBC (video). Natasha and Eddie Batha, whose daughter has Down syndrome, say parents need up-to-date and accurate information upon diagnosis to counter the powerful public stigma against the condition. A partial transcript is here:
He said: “You’re led to believe that it’s the worst thing that could possibly ever happen to you.
“And then you realize it’s just another human being who happens to be a little bit different.
“She just takes a bit more effort and she is a bit slower to pick up on things.”
His wife agreed that many people were misinformed about Down’s syndrome and she thinks this has contributed to the high abortion rate.
She said: “Because you have a test [during pregnancy] you think that it must be a terrible thing if it happened.
“There’s no qualifying information and I think that would be really useful to get that and it might affect a lot of people’s decision as to whether they could live with that.”
‘Most women’ end Down’s pregnancy — interview on BBC Radio 4 with Joan Morris, professor of medical statistics at Queen Mary university in London, who compiled the research, and Jane Fisher, chief executive of Antenatal Results and Choices (ARC).