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	<title>Disability News &#124; PatriciaEBauer.com &#187; first-person</title>
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	<link>http://www.patriciaebauer.com</link>
	<description>Disability News &#124; PatriciaEBauer.com</description>
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		<title>A mom&#8217;s story: Mixed emotions over fixing son&#8217;s cleft lip</title>
		<link>http://www.patriciaebauer.com/2010/02/26/mixed-emotions-cleft-lip-28646/</link>
		<comments>http://www.patriciaebauer.com/2010/02/26/mixed-emotions-cleft-lip-28646/#comments</comments>
		<pubDate>Fri, 26 Feb 2010 06:12:13 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[cleft palate]]></category>
		<category><![CDATA[families]]></category>
		<category><![CDATA[first-person]]></category>
		<category><![CDATA[personal stories]]></category>
		<category><![CDATA[cleft lip]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[surgery]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=28646</guid>
		<description><![CDATA[Writing in  the New York Times Motherlode blog, Meera Oliva says she was devastated when she learned prenatally that the child she was carrying had a cleft lip, but her concerns disappeared as soon as her son, Elan, was born. Now that Elan is six months old and about to undergo his third surgery, Oliva [...]]]></description>
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		<slash:comments>0</slash:comments>
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		<item>
		<title>&#8216;To us, she was Emily&#8217;</title>
		<link>http://www.patriciaebauer.com/2010/01/09/emily-27063/</link>
		<comments>http://www.patriciaebauer.com/2010/01/09/emily-27063/#comments</comments>
		<pubDate>Sun, 10 Jan 2010 04:57:17 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[abortion]]></category>
		<category><![CDATA[first-person]]></category>
		<category><![CDATA[personal stories]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[disability news and commentary]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=27063</guid>
		<description><![CDATA[In the Life and Style section of the [UK] Guardian, a lengthy first-person account of a couple who chose abortion after prenatal tests brought a diagnosis of Down syndrome. Nick Hinton reports that the decision gradually tore his family apart. An excerpt:
I spent a lot of time wondering where it had gone so horribly wrong. [...]]]></description>
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		<slash:comments>0</slash:comments>
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		<item>
		<title>Two prenatal Down syndrome diagnoses, two perspectives</title>
		<link>http://www.patriciaebauer.com/2009/07/20/two-perspectives-20323/</link>
		<comments>http://www.patriciaebauer.com/2009/07/20/two-perspectives-20323/#comments</comments>
		<pubDate>Mon, 20 Jul 2009 15:23:41 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[ethics]]></category>
		<category><![CDATA[families]]></category>
		<category><![CDATA[first-person]]></category>
		<category><![CDATA[personal stories]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Down's syndrome]]></category>
		<category><![CDATA[Helena Campbell]]></category>
		<category><![CDATA[Sal Hamlyn]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=20323</guid>
		<description><![CDATA[From the [UK] Sunday Times:
Two mothers share their perspectives on deciding whether or not to terminate a pregnancy after receiving a Down syndrome diagnosis:
Helena Campbell says she could not bear the thought of bringing a child into the world to suffer. She says she knew right away that terminating her pregnancy was the right thing [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2009/07/20/two-perspectives-20323/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<item>
		<title>&#8216;99 Balloons&#8217; video a tribute to son&#8217;s short life</title>
		<link>http://www.patriciaebauer.com/2009/06/24/99-balloons-19055/</link>
		<comments>http://www.patriciaebauer.com/2009/06/24/99-balloons-19055/#comments</comments>
		<pubDate>Wed, 24 Jun 2009 14:52:57 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[first-person]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[personal stories]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[trisomy 18]]></category>
		<category><![CDATA[video]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Eliot Mooney]]></category>
		<category><![CDATA[family]]></category>
		<category><![CDATA[Ginny Mooney]]></category>
		<category><![CDATA[Hazel Mooney]]></category>
		<category><![CDATA[Matt Mooney]]></category>
		<category><![CDATA[religion]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=19055</guid>
		<description><![CDATA[From the Today Show, with video:
Ginny and Matt Mooney learned before birth that their son Eliot would be born with a rare genetic syndrome called Trisomy 18.  Doctors told them that if their son lived through childbirth, he would probably not survive more than a few weeks. They decided to document and celebrate their son&#8217;s [...]]]></description>
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		<slash:comments>2</slash:comments>
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		<title>Op-ed: Urgent need to focus on care for adults with autism</title>
		<link>http://www.patriciaebauer.com/2009/04/04/autism-adult-services-13721/</link>
		<comments>http://www.patriciaebauer.com/2009/04/04/autism-adult-services-13721/#comments</comments>
		<pubDate>Sat, 04 Apr 2009 14:21:39 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[autism]]></category>
		<category><![CDATA[families]]></category>
		<category><![CDATA[first-person]]></category>
		<category><![CDATA[funding]]></category>
		<category><![CDATA[housing]]></category>
		<category><![CDATA[independent living]]></category>
		<category><![CDATA[adult services]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Linda H. Davis]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=13721</guid>
		<description><![CDATA[Linda H. Davis writes in the Washington Post that a tidal wave of autistic children entering adulthood over the next 15 years threatens to swamp social service networks. By 2023, she says, it&#8217;ll cost $27 billion annually to take care of them all.
Yet the challenges of adult autism are overlooked, she says, as we continue [...]]]></description>
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		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>Mom wants Texas institution kept open</title>
		<link>http://www.patriciaebauer.com/2009/02/11/jacque-beavers-9268/</link>
		<comments>http://www.patriciaebauer.com/2009/02/11/jacque-beavers-9268/#comments</comments>
		<pubDate>Wed, 11 Feb 2009 13:13:52 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[Texas institutions]]></category>
		<category><![CDATA[families]]></category>
		<category><![CDATA[first-person]]></category>
		<category><![CDATA[group homes]]></category>
		<category><![CDATA[institutionalization]]></category>
		<category><![CDATA[intellectual/developmental disabilities]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[intellectual disbilities]]></category>
		<category><![CDATA[Jacque Beavers]]></category>
		<category><![CDATA[Mexia State School]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=9268</guid>
		<description><![CDATA[From the Waco [Texas] Tribune-Herald:
Jacque Beavers, the mother of a woman who lives at the Mexia State School, opposes the closing of the state&#8217;s institutions and says her daughter would have no place to go if the facility were closed.
An excerpt:
Julie has lived at Mexia State School since 1976. Someone must diaper, bathe, dress, feed, [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2009/02/11/jacque-beavers-9268/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
		</item>
		<item>
		<title>&#8216;Knowing Gabriel&#8217;</title>
		<link>http://www.patriciaebauer.com/2008/12/11/knowing-gabriel-5829/</link>
		<comments>http://www.patriciaebauer.com/2008/12/11/knowing-gabriel-5829/#comments</comments>
		<pubDate>Thu, 11 Dec 2008 20:46:53 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[abortion]]></category>
		<category><![CDATA[first-person]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[Angela Blakston]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[prenatal testing]]></category>
		<category><![CDATA[termination]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=5829</guid>
		<description><![CDATA[Prospective parents need updated information about Down syndrome along with prenatal tests, author says
Journalist Angela Blakston, writing in The Age [Melbourne, Australia], is troubled about the recent recommendation by experts in Australia that all pregnant women should be offered screening for Down syndrome. Blakston fears that universal screening would send a clear message that the [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2008/12/11/knowing-gabriel-5829/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Column: Life looks good from a wheelchair</title>
		<link>http://www.patriciaebauer.com/2008/12/02/column-life-wheelchair-5299/</link>
		<comments>http://www.patriciaebauer.com/2008/12/02/column-life-wheelchair-5299/#comments</comments>
		<pubDate>Tue, 02 Dec 2008 20:14:17 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[Medicaid/Medicare]]></category>
		<category><![CDATA[advocacy]]></category>
		<category><![CDATA[books]]></category>
		<category><![CDATA[employment/jobs]]></category>
		<category><![CDATA[first-person]]></category>
		<category><![CDATA[wheelchair]]></category>
		<category><![CDATA[attendant]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Gary Presley]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=5299</guid>
		<description><![CDATA[Author Gary Presley has been riding in a wheelchair since he got polio 50 years ago, and says he has nothing to complain about. Writing in the Washington Post, he says he plans to &#8220;dance through life until hell freezes over.&#8221; An excerpt:
&#8230; like other people who have evolved from being &#8220;an invalid confined to [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2008/12/02/column-life-wheelchair-5299/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>&#8216;Dear Noel, Is life really not worth living?&#8217;</title>
		<link>http://www.patriciaebauer.com/2008/11/17/dear-noel-4920/</link>
		<comments>http://www.patriciaebauer.com/2008/11/17/dear-noel-4920/#comments</comments>
		<pubDate>Mon, 17 Nov 2008 21:11:02 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[assisted suicide]]></category>
		<category><![CDATA[first-person]]></category>
		<category><![CDATA[international]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Liz Carr]]></category>
		<category><![CDATA[Noel Martin]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=4920</guid>
		<description><![CDATA[
From the BBC News Magazine:
Noel Martin, a British construction worker who was paralyzed from the neck down  after being attacked by neo-Nazis near Berlin 12 years ago, says he is planning a trip to Switzerland to commit suicide. Broadcaster Liz Carr interviews Martin for a BBC report (included here), then follows up with an [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2008/11/17/dear-noel-4920/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>One mom shares experience with DS</title>
		<link>http://www.patriciaebauer.com/2008/10/23/one-mom-shares-3790/</link>
		<comments>http://www.patriciaebauer.com/2008/10/23/one-mom-shares-3790/#comments</comments>
		<pubDate>Thu, 23 Oct 2008 16:24:34 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[families]]></category>
		<category><![CDATA[first-person]]></category>
		<category><![CDATA[parents]]></category>
		<category><![CDATA[stereotypes]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Hallie Levine Sklar]]></category>
		<category><![CDATA[Jamie Sklar]]></category>
		<category><![CDATA[Johanna Sklar]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=3790</guid>
		<description><![CDATA[Writing in Parenting Magazine, Connecticut writer Hallie Levine Sklar tells how she came to accept her four-month-old daughter Johanna.
She and her husband Jamie had been &#8220;ambivalent parents,&#8221; self-absorbed and career-driven. When they found out after Johanna&#8217;s birth that their baby had Down syndrome, they were sure they wouldn&#8217;t be able to handle it.
But as time [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2008/10/23/one-mom-shares-3790/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
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