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	<title>Disability News &#124; PatriciaEBauer.com &#187; epilepsy</title>
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	<link>http://www.patriciaebauer.com</link>
	<description>Disability News &#124; PatriciaEBauer.com</description>
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		<title>Geneticist: Demand for &#8216;designer babies&#8217; will rise dramatically</title>
		<link>http://www.patriciaebauer.com/2010/01/08/designer-babies-27033/</link>
		<comments>http://www.patriciaebauer.com/2010/01/08/designer-babies-27033/#comments</comments>
		<pubDate>Fri, 08 Jan 2010 20:44:27 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[abortion]]></category>
		<category><![CDATA[autism]]></category>
		<category><![CDATA[cystic fibrosis]]></category>
		<category><![CDATA[diabetes]]></category>
		<category><![CDATA[epilepsy]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[genetic screening]]></category>

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		<description><![CDATA[From the [UK] Times: A leading geneticist writing in the journal Nature predicts a dramatic increase in parental demand for genetically screened &#8220;designer babies&#8221; over the next decade. David Goldstein of Duke University expects to see many more couples screening embryos for genetic variations that substantially raise the risk of common conditions like diabetes, heart [...]]]></description>
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		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Column: &#8216;No way to refer to the vulnerable&#8217;</title>
		<link>http://www.patriciaebauer.com/2009/12/18/siegel-intolerance-26822/</link>
		<comments>http://www.patriciaebauer.com/2009/12/18/siegel-intolerance-26822/#comments</comments>
		<pubDate>Fri, 18 Dec 2009 07:33:31 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[commentary]]></category>
		<category><![CDATA[discrimination]]></category>
		<category><![CDATA[epilepsy]]></category>
		<category><![CDATA[intellectual/developmental disabilities]]></category>
		<category><![CDATA[language]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[Obama Special Olympics remark]]></category>
		<category><![CDATA[personal stories]]></category>
		<category><![CDATA[public attitudes]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[intellectual disability]]></category>
		<category><![CDATA[randolph siegel]]></category>
		<category><![CDATA[retard]]></category>
		<category><![CDATA[Special Olympics]]></category>
		<category><![CDATA[stigma]]></category>
		<category><![CDATA[Tropic Thunder]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=26822</guid>
		<description><![CDATA[Writing in the Chicago Tribune, Parade Magazine publisher Randolph Siegel lists a few examples of the ways in which people with cognitive impairments are ridiculed in the national media. Here&#8217;s just one: A leading character on HBO&#8217;s &#8220;Curb Your Enthusiasm seduces a character with an intellectual disability, then belittles his victim when she speaks out. [...]]]></description>
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		<slash:comments>2</slash:comments>
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		<title>Artist tries to induce onstage epileptic seizure; Debate ensues</title>
		<link>http://www.patriciaebauer.com/2009/12/17/artist-epileptic-seizure-26791/</link>
		<comments>http://www.patriciaebauer.com/2009/12/17/artist-epileptic-seizure-26791/#comments</comments>
		<pubDate>Thu, 17 Dec 2009 23:04:41 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[advocacy]]></category>
		<category><![CDATA[arts/music]]></category>
		<category><![CDATA[entertainment]]></category>
		<category><![CDATA[epilepsy]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[public attitudes]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[performance]]></category>
		<category><![CDATA[Rita Marcalo]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=26791</guid>
		<description><![CDATA[Charities raised objections when Rita Marcalo got a grant to explore her epilepsy on her own terms From the Yorkshire [UK] Post, [UK] Times: Performance artist Rita Marcalo said she felt &#8220;guilty that I had perhaps short-changed people&#8221; when she failed to induce a seizure on stage as she had hoped, but pleased that her [...]]]></description>
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		<slash:comments>0</slash:comments>
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		<item>
		<title>Axelrods hunt a cure for epilepsy</title>
		<link>http://www.patriciaebauer.com/2009/10/26/epilepsy-cure-24685/</link>
		<comments>http://www.patriciaebauer.com/2009/10/26/epilepsy-cure-24685/#comments</comments>
		<pubDate>Mon, 26 Oct 2009 23:20:47 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[epilepsy]]></category>
		<category><![CDATA[funding]]></category>
		<category><![CDATA[Obama administration]]></category>
		<category><![CDATA[research funding]]></category>
		<category><![CDATA[David Axelrod]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Katie Couric]]></category>
		<category><![CDATA[Lauren Axelrod]]></category>
		<category><![CDATA[Susan Axelrod]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=24685</guid>
		<description><![CDATA[From 60 Minutes, AP, Chicago Sun-Times: Senior presidential adviser David Axelrod and his wife Susan appeared on 60 Minutes yesterday to talk about their family&#8217;s 28-year struggle with epilepsy. Daughter Lauren is one of three million Americans living with the disease.  &#8212; more than the number of Americans who have Parkinson&#8217;s, cerebral palsy and multiple [...]]]></description>
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		<slash:comments>0</slash:comments>
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		<item>
		<title>Nurses&#8217; medication policy puts students at risk, parents say</title>
		<link>http://www.patriciaebauer.com/2009/10/13/epilepsy-medication-risk-23926/</link>
		<comments>http://www.patriciaebauer.com/2009/10/13/epilepsy-medication-risk-23926/#comments</comments>
		<pubDate>Tue, 13 Oct 2009 16:18:39 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[education]]></category>
		<category><![CDATA[epilepsy]]></category>
		<category><![CDATA[law]]></category>
		<category><![CDATA[medicine]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[public policy]]></category>
		<category><![CDATA[Board of Registered Nursing]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Distatin]]></category>
		<category><![CDATA[Orange County]]></category>
		<category><![CDATA[Pat DeLorenzo]]></category>
		<category><![CDATA[seizure]]></category>
		<category><![CDATA[tuberous sclerosis]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=23926</guid>
		<description><![CDATA[From the Orange County Register (with video): A recent policy change by California&#8217;s nursing board is endangering the lives of students by withholding medication needed to quell potentially life-threatening seizures, say parents and epilepsy advocates. A directive issued by the board last month says no school staff except registered nurses can administer Diastat, and that [...]]]></description>
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		<slash:comments>0</slash:comments>
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		<item>
		<title>Father launches a fight against Florida waiting list</title>
		<link>http://www.patriciaebauer.com/2009/08/04/florida-waiting-list-21259/</link>
		<comments>http://www.patriciaebauer.com/2009/08/04/florida-waiting-list-21259/#comments</comments>
		<pubDate>Tue, 04 Aug 2009 15:29:22 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[advocacy]]></category>
		<category><![CDATA[autism]]></category>
		<category><![CDATA[budget]]></category>
		<category><![CDATA[epilepsy]]></category>
		<category><![CDATA[waiting list/waivers]]></category>
		<category><![CDATA[Agency for Persons with Disabilities]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Florida]]></category>
		<category><![CDATA[Left Behind in Florida]]></category>
		<category><![CDATA[Mike Coonan]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=21259</guid>
		<description><![CDATA[From AP/Gainesville [FL] Sun: Advocate Mike Coonan has launched an organization called &#8220;Left Behind in Florida,&#8221; to lobby for the more than 18,000 people in Florida waiting to receive services from the state&#8217;s Agency for Persons with Disabilities. Coonan&#8217;s 26-year-old son has epilepsy and autism. He lives at home and works at a local supermarket [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2009/08/04/florida-waiting-list-21259/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Epilepsy: Overlooked and underfunded too long</title>
		<link>http://www.patriciaebauer.com/2009/04/13/epilepsy-overlooked-aunderfunded-14266/</link>
		<comments>http://www.patriciaebauer.com/2009/04/13/epilepsy-overlooked-aunderfunded-14266/#comments</comments>
		<pubDate>Mon, 13 Apr 2009 18:44:16 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[epilepsy]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[Obama administration]]></category>
		<category><![CDATA[research funding]]></category>
		<category><![CDATA[David Axelrod]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[funding]]></category>
		<category><![CDATA[Lauren Axelrod]]></category>
		<category><![CDATA[research news]]></category>
		<category><![CDATA[Susan Axelrod]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=14266</guid>
		<description><![CDATA[A &#8216;Call to Action&#8217; &#8212; Newsweek cover story by Jon Meacham, the magazine&#8217;s editor Epilepsy in America is as common as breast cancer and kills as many people. Up to 50,000 Americans die each year from seizures and related causes. More than 3 million Americans are affected by epilepsy. Their mortality is two to three [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2009/04/13/epilepsy-overlooked-aunderfunded-14266/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Required reading</title>
		<link>http://www.patriciaebauer.com/2009/03/04/required-reading-dominic-lawson-11061/</link>
		<comments>http://www.patriciaebauer.com/2009/03/04/required-reading-dominic-lawson-11061/#comments</comments>
		<pubDate>Thu, 05 Mar 2009 00:19:21 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[cerebral palsy]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[epilepsy]]></category>
		<category><![CDATA[families]]></category>
		<category><![CDATA[international]]></category>
		<category><![CDATA[neglect]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[personal stories]]></category>
		<category><![CDATA[public attitudes]]></category>
		<category><![CDATA[Cerrie Burnell]]></category>
		<category><![CDATA[David Cameron]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Domenica Lawson]]></category>
		<category><![CDATA[Dominic Lawson]]></category>
		<category><![CDATA[fear]]></category>
		<category><![CDATA[Ivan Cameron]]></category>
		<category><![CDATA[stigma]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=11061</guid>
		<description><![CDATA[Dominic Lawson on Ivan Cameron and the meaning of life Writing in the [UK] Sunday Times, columnist Dominic Lawson says the recent death of young Ivan Cameron, son of British opposition leader David Cameron, is a reminder that there remains a &#8220;visceral public fear and even horror&#8221; of people with disabilities. Ivan had cerebral palsy [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2009/03/04/required-reading-dominic-lawson-11061/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Columnist: &#8216;David Cameron&#8217;s open love for his son&#8217;</title>
		<link>http://www.patriciaebauer.com/2009/03/02/india-knight-10784/</link>
		<comments>http://www.patriciaebauer.com/2009/03/02/india-knight-10784/#comments</comments>
		<pubDate>Mon, 02 Mar 2009 16:15:22 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[cerebral palsy]]></category>
		<category><![CDATA[chronic illness]]></category>
		<category><![CDATA[commentary]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[epilepsy]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[international]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[personal stories]]></category>
		<category><![CDATA[politics]]></category>
		<category><![CDATA[public attitudes]]></category>
		<category><![CDATA[columnist]]></category>
		<category><![CDATA[David Cameron]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[India Knight]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=10784</guid>
		<description><![CDATA[Writing in the [UK] Sunday Times, columnist India Knight says Ivan Cameron, the son of British opposition leader David Cameron, left a legacy that will fundamentally change the public&#8217;s perception of disability. Ivan had cerebral palsy and epilepsy, and died last week at the age of six; his father is heavily favored to be Britain&#8217;s [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2009/03/02/india-knight-10784/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>&#8216;Iona and Ivan &#8212; A tale of two children and two families&#8217;</title>
		<link>http://www.patriciaebauer.com/2009/02/26/iona-and-ivan-two-families-10666/</link>
		<comments>http://www.patriciaebauer.com/2009/02/26/iona-and-ivan-two-families-10666/#comments</comments>
		<pubDate>Thu, 26 Feb 2009 12:02:55 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[blindness/visual impairments]]></category>
		<category><![CDATA[caregivers]]></category>
		<category><![CDATA[commentary]]></category>
		<category><![CDATA[epilepsy]]></category>
		<category><![CDATA[international]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[David Cameron]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Fiona Birell]]></category>
		<category><![CDATA[Ian Birrell]]></category>
		<category><![CDATA[seizure disorder]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=10666</guid>
		<description><![CDATA[Ian Birrell, deputy editor of the [UK] Independent and the father of a teenager with complex disabilities, reflects on the recent death of Ivan Cameron, the six-year-old son of UK Conservative leader David Cameron. Over the years, Birrell says, he Cameron bonded over their shared understanding of the &#8220;hidden world of disability&#8221; and the need [...]]]></description>
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		<slash:comments>0</slash:comments>
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