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	<title>Disability News &#124; PatriciaEBauer.com &#187; cystic fibrosis</title>
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	<description>Disability News &#124; PatriciaEBauer.com</description>
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		<title>Geneticist: Demand for &#8216;designer babies&#8217; will rise dramatically</title>
		<link>http://www.patriciaebauer.com/2010/01/08/designer-babies-27033/</link>
		<comments>http://www.patriciaebauer.com/2010/01/08/designer-babies-27033/#comments</comments>
		<pubDate>Fri, 08 Jan 2010 20:44:27 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[abortion]]></category>
		<category><![CDATA[autism]]></category>
		<category><![CDATA[cystic fibrosis]]></category>
		<category><![CDATA[diabetes]]></category>
		<category><![CDATA[epilepsy]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[genetic screening]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=27033</guid>
		<description><![CDATA[From the [UK] Times: A leading geneticist writing in the journal Nature predicts a dramatic increase in parental demand for genetically screened &#8220;designer babies&#8221; over the next decade. David Goldstein of Duke University expects to see many more couples screening embryos for genetic variations that substantially raise the risk of common conditions like diabetes, heart [...]]]></description>
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		<slash:comments>0</slash:comments>
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		<item>
		<title>Mom asks: Should I have aborted daughter with CF?</title>
		<link>http://www.patriciaebauer.com/2009/12/13/abortion-cf-26579/</link>
		<comments>http://www.patriciaebauer.com/2009/12/13/abortion-cf-26579/#comments</comments>
		<pubDate>Sun, 13 Dec 2009 09:11:18 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[abortion]]></category>
		<category><![CDATA[cystic fibrosis]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[disaiblity news and commentary]]></category>
		<category><![CDATA[prenatal testing]]></category>
		<category><![CDATA[stigma]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=26579</guid>
		<description><![CDATA[Writing in the [UK] Daily Mail, mother Deborah Dooley responds to a neighbor&#8217;s comment that she should have terminated her pregnancy rather than give birth to her daughter, who has cystic fibrosis. Daughter Flo is now 20 and is studying dance. An excerpt: Flo is bright, beautiful, funny, affectionate, clever and hard-working. Yet she is [...]]]></description>
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		<slash:comments>0</slash:comments>
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		<title>Universal embryo test expected soon</title>
		<link>http://www.patriciaebauer.com/2009/07/02/embryo-test-19495/</link>
		<comments>http://www.patriciaebauer.com/2009/07/02/embryo-test-19495/#comments</comments>
		<pubDate>Thu, 02 Jul 2009 13:37:58 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[assisted reproduction]]></category>
		<category><![CDATA[autism]]></category>
		<category><![CDATA[cystic fibrosis]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[selective termination]]></category>
		<category><![CDATA[Alan Handyside]]></category>
		<category><![CDATA[British Fertility Centre]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[embryo]]></category>
		<category><![CDATA[genetic mapping]]></category>
		<category><![CDATA[London's Bridges Center]]></category>
		<category><![CDATA[Tony Rutherford]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=19495</guid>
		<description><![CDATA[Can identify any of 15,000 known genetic disorders, researchers say From the [UK] Times, [UK] Telegraph, BBC News: A universal test to check embryos for almost any genetic condition could be available in the UK within a year, British researchers say. Clinical trials are expected to start within months. Researchers say the £2,500 procedure, called [...]]]></description>
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		<slash:comments>0</slash:comments>
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		<title>Sequenom sees big market in prenatal testing for autism, other conditions</title>
		<link>http://www.patriciaebauer.com/2008/11/20/sequenom-testing-5054/</link>
		<comments>http://www.patriciaebauer.com/2008/11/20/sequenom-testing-5054/#comments</comments>
		<pubDate>Thu, 20 Nov 2008 11:34:15 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[autism]]></category>
		<category><![CDATA[business]]></category>
		<category><![CDATA[cystic fibrosis]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[Charles Cantor]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[genetic testing]]></category>
		<category><![CDATA[Harry Stylli]]></category>
		<category><![CDATA[Sequenom]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=5054</guid>
		<description><![CDATA[From CNN Money: San Diego-based Sequenom, Inc. is best known for a prenatal test designed to detect Down syndrome, but its chief executive said this week that the company sees an even bigger opportunity in genetic testing for inherited diseases like autism, heart ailments, cystic fibrosis and birth defects. Speaking at the annual Lazard Capital [...]]]></description>
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		<slash:comments>2</slash:comments>
		</item>
		<item>
		<title>Congress OKs Kennedy-Brownback disability diagnosis bill</title>
		<link>http://www.patriciaebauer.com/2008/09/25/kennedy-brownback-3-3302/</link>
		<comments>http://www.patriciaebauer.com/2008/09/25/kennedy-brownback-3-3302/#comments</comments>
		<pubDate>Fri, 26 Sep 2008 03:27:10 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[abortion]]></category>
		<category><![CDATA[cystic fibrosis]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[families]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[intellectual/developmental disabilities]]></category>
		<category><![CDATA[law]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[PB Articles & Essays]]></category>
		<category><![CDATA[personal stories]]></category>
		<category><![CDATA[politics]]></category>
		<category><![CDATA[public attitudes]]></category>
		<category><![CDATA[selective termination]]></category>
		<category><![CDATA[spina bifida]]></category>
		<category><![CDATA[trisomy 18]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Edward M. Kennedy]]></category>
		<category><![CDATA[George Bush]]></category>
		<category><![CDATA[National Down Syndrome Congress]]></category>
		<category><![CDATA[National Down Syndrome Society]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[Sam Brownback]]></category>
		<category><![CDATA[Trisomy 18 Foundation]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=3302</guid>
		<description><![CDATA[By Patricia E. Bauer The House has joined the Senate in passing a measure that disability rights advocates hope will fundamentally change the conversations that are taking place between pregnant American women and their doctors. Passed on a voice vote on Thursday, the bill would provide for accurate, up-to-date information and support for parents who [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2008/09/25/kennedy-brownback-3-3302/feed/</wfw:commentRss>
		<slash:comments>9</slash:comments>
		</item>
		<item>
		<title>&#8216;How did Chopin die? It matters&#8217;</title>
		<link>http://www.patriciaebauer.com/2008/07/30/chopin-it-matters-2847/</link>
		<comments>http://www.patriciaebauer.com/2008/07/30/chopin-it-matters-2847/#comments</comments>
		<pubDate>Wed, 30 Jul 2008 16:50:09 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[arts/music]]></category>
		<category><![CDATA[celebrities]]></category>
		<category><![CDATA[commentary]]></category>
		<category><![CDATA[cystic fibrosis]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[history]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Frederic Chopin]]></category>
		<category><![CDATA[genetic testing]]></category>
		<category><![CDATA[piano]]></category>
		<category><![CDATA[Poland]]></category>
		<category><![CDATA[Tom Service]]></category>
		<category><![CDATA[Warsaw]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=2847</guid>
		<description><![CDATA[Tom Service, [UK] Guardian music blogger, disputes Poland&#8217;s refusal to allow the heart of Frederic Chopin (left) to be tested for cystic fibrosis. As the scientists say, &#8216;Is it not right to make an attempt to prove to many suffering people that many things count in life much more than a weak physical body, and [...]]]></description>
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		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Poland: Don&#8217;t test Chopin&#8217;s heart for cystic fibrosis</title>
		<link>http://www.patriciaebauer.com/2008/07/26/chopins-heart-2801/</link>
		<comments>http://www.patriciaebauer.com/2008/07/26/chopins-heart-2801/#comments</comments>
		<pubDate>Sat, 26 Jul 2008 13:29:04 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[arts/music]]></category>
		<category><![CDATA[cystic fibrosis]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[research news]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[Frederic Chopin]]></category>
		<category><![CDATA[Michal Witt]]></category>
		<category><![CDATA[Poland]]></category>
		<category><![CDATA[Warsaw]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=2801</guid>
		<description><![CDATA[From Time/Associated Press, the [UK] Guardian: The Polish government has denied requests from scientists to perform DNA tests on Chopin&#8217;s heart to determine whether the composer actually died from complications associated with cystic fibrosis, not tuberculosis. Chopin&#8217;s heart has been preserved in a jar of alcohol inside a pillar at Warsaw&#8217;s Holy Cross Church since [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2008/07/26/chopins-heart-2801/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Embryo screening? Been there, done that, doctors say</title>
		<link>http://www.patriciaebauer.com/2008/07/02/embryo-screenin-2570/</link>
		<comments>http://www.patriciaebauer.com/2008/07/02/embryo-screenin-2570/#comments</comments>
		<pubDate>Wed, 02 Jul 2008 20:56:55 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[abortion]]></category>
		<category><![CDATA[autism]]></category>
		<category><![CDATA[cancer]]></category>
		<category><![CDATA[cystic fibrosis]]></category>
		<category><![CDATA[families]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[selective termination]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[prenatal screening]]></category>
		<category><![CDATA[Sherman Silber]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=2570</guid>
		<description><![CDATA[From ABC News, more reaction to the story about the parents who used new technology to screen their embryos for one without the BRCA1 gene. Dr. Sherman J. Silber, director of the Infertility Center of St. Louis at St. Luke&#8217;s Hospital, says doctors have been prescreening fertilized embryos since 1990, when people first started trying [...]]]></description>
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		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Additional items for June 23, 2008</title>
		<link>http://www.patriciaebauer.com/2008/06/23/items-2452/</link>
		<comments>http://www.patriciaebauer.com/2008/06/23/items-2452/#comments</comments>
		<pubDate>Tue, 24 Jun 2008 02:21:25 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[ADA]]></category>
		<category><![CDATA[cystic fibrosis]]></category>
		<category><![CDATA[discrimination]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[dwarfism/little people]]></category>
		<category><![CDATA[dyslexia]]></category>
		<category><![CDATA[institutionalization]]></category>
		<category><![CDATA[special education]]></category>
		<category><![CDATA[Americans Disabilities Act]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[little people]]></category>
		<category><![CDATA[stereotypes]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=2452</guid>
		<description><![CDATA[Down syndrome babies have rights, too (Fox News blogs) Man with autism found alive after a week alone in the woods (AP/Chicago Tribune) Forum big draw for little people (Windsor, Ontario, Star) Little People of America conference fights stereotypes, discrimination (Detroit Free Press) Britain recruiting people with disabilities to become teachers ([UK] Guardian) Washington&#8217;s right-to-die [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2008/06/23/items-2452/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Polish professor: Chopin had cystic fibrosis</title>
		<link>http://www.patriciaebauer.com/2008/06/02/polish-professor-chopin-had-cystic-fibrosis-2242/</link>
		<comments>http://www.patriciaebauer.com/2008/06/02/polish-professor-chopin-had-cystic-fibrosis-2242/#comments</comments>
		<pubDate>Mon, 02 Jun 2008 14:41:40 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[arts/music]]></category>
		<category><![CDATA[celebrities]]></category>
		<category><![CDATA[cystic fibrosis]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[music]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=2242</guid>
		<description><![CDATA[From Polskie Radio, Poland&#8217;s radio network: Frederic Chopin, widely regarded as Poland&#8217;s greatest composer, died of complications of cystic fibrosis, according to Professor Wojciech Cichy of the Medical University in Poznan. Reports at the time of Chopin&#8217;s death in 1849 had attributed his death to tuberculosis. As evidence, Prof. Cichy points to the presence of [...]]]></description>
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		<slash:comments>0</slash:comments>
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