Disability news, Accessibility Issues, Disability Issues, Accessiblity News

Archive for the ‘cultural attitudes’ Category

U.S. firm makes dolls with appearance of Down syndrome

Sunday, June 29th, 2008

From ABC News:

Parents of children with Down syndrome are enthusiastic about a line of dolls that are intended to look like their kids. Downi Creations, an American company, manufactures the toys to help children with Down syndrome gain validation and acceptance. The dolls are also sold to colleges and universities as teaching tools.

Dr. Susan Anderson, director of the Down Syndrome Program at the University of Virginia Children’s Hospital, was one of the first people to buy one. She says she uses it to teach pediatric residents about Down syndrome.

“I think this is an acknowledgement that this is an important group of children that we have in our community,” she says.

Down Syndrome Friends, a line of similar dolls from Europe, recently has been the target of offensive online comments and has posted a disclaimer on its website.

See also:
Maker says they bring out beauty, but to mom they’re ‘weird’, Chicago Sun-Times

Related post here.

(ABC News photo)

‘Are disability dolls a blessing or a sick joke?’

Wednesday, June 25th, 2008

From the [UK] Times:

Doll manufacturers are starting to turn out all types of “disability dolls,” with prosthetic limbs, hearing aids, blindness and Down syndrome (left). In addition to reaping potential financial benefits, dollmakers say they are hoping to build the confidence of children with differences, as well as educate children about disability and help to remove stigma.

The chief executive of the Down’s Syndrome Association in the UK cautions parents, saying the dolls lack a research basis and vary widely in quality and accuracy. Other professionals worry that they will serve to further isolate and stigmatize children who have lifelong conditions like cerebral palsy or Down syndrome.

Parents’ opinions:

  • Rosa Monckton: [Daughter] Domenica’s childhood is as full of joy, pain and sorrow as any other. She should be defined by her common humanity rather than by her Down’s syndrome. She does not want to live in a parallel world peopled with Down’s syndrome dolls distinguishable from the rest. She does not want to be defined by her facial features, or by the gap between her big toe and the rest of her toes being wider than most, or that she is half the height of her peers. Still less would she want these differences portrayed in a series of sickly looking, politically correct mannequins.
  • Simon Barnes: People with Down’s syndrome are people, not syndromes. The more such people we bump into in our daily lives, the less of a big deal it becomes. The Downsie doll is just one more minor symptom of a major change. The doll is ‘orrible, but I like it. The thought behind it, anyway.

Olympic organizers apologize for ‘inappropriate language’

Monday, June 2nd, 2008

From the Sydney [Australia] Morning Herald:

Beijing Olympics organizers have apologized for offending disabled people and scrapped a training manual for volunteers which sparked a wave of protest.

The offending guide has been pulled while authorities revise “inappropriate language” applied to the disabled.

“Some mistakes were made in describing people with disabilities,” said a website statement from the organising body BOCOG.

The manual for volunteers said disabled people could be unsocial, stubborn, controlling, defensive and have a strong sense of inferiority. Earlier, the manual had been withdrawn without apology.

Beijing withdraws advice on disabilities

Friday, May 30th, 2008

Associated Press report in the International Herald Tribune:

Olympic organizers said Thursday that they had withdrawn parts of an English translation of a guide for volunteers because of “inappropriate language” used to describe disabled athletes.

Zhang Qiuping, director of the Paralympic Games in Beijing, did not offer an apology and attributed the problems to poor translation. “Probably it’s cultural difference and mistranslation,” Zhang said.

The Chinese-language version of the text remained online and was nearly identical to the English, using essentially the same stereotypes to refer to the disabled.

The guide described people with disabilities as unsocial, stubborn, controlling, defensive and possessing a strong sense of inferiority. See earlier post: Disabled groups outraged by Beijing snub.

You’ve been warned: What NOT to say to people with disabilities

Friday, April 18th, 2008

From DiversityInc.com, a publication about diversity in business, a list of seven things you can NEVER say to people with disabilities. (The emphasis is theirs.) Developed with the participation of the National Organization on Disability (NOD) and the Disability Rights Education and Defense Fund, the list is just the right length to be posted on the office bulletin board.

Take note:

  1. “What’s wrong/what happened?” or “Were you born that way?”
  2. “Oh, if you just have faith, you can be healed.”
  3. Speaking slowly or loudly to someone who is in a wheelchair.
  4. “I don’t even think of you as a person with a disability.”
  5. “How do you go to the bathroom?”
  6. “But you look so good.”
  7. “Oh, you’re here, you must feel better.”

And that doesn’t even take into account the standard list of culturally insensitive words like “handicapped,” “retarded” and “slow” to refer to people with disabilities, or “compliments” like “you look so good.”

“These terms are unacceptable because they are linked to a history that the general public isn’t aware of,” says Nancy Starnes, vice president and chief of staff for the National Organization on Disability (NOD). “And just like there are terms that you don’t use for African Americans anymore, the same goes for people with disabilities.”

People actually say this stuff? Given that the Census Bureau reports that there are 11.8 million people with reported disabilities in the work force, surely we’ve got a lot of reliable correspondents out there. Readers, what have you heard? Tell us about your most memorable office interaction.

For inspiration, take a look at DiversityInc’s other lists of cringeworthy comments:

The long and short of Marfan syndrome

Thursday, March 20th, 2008

disability news and commentary, Lucy HunterLucy Hunter’s tall frame is due to a genetic disorder. Yet she refused screening for her sons, who both now have the condition. She explains why she has no regrets

A first-person piece from the [UK] Independent:

… After genetic counseling, I considered the options. Although a prenatal test for Marfan’s exists, the idea of aborting my own child because he is, well, like me, was absolutely abhorrent. I looked into the more palatable idea of having a “designer” embryo implanted using IVF. Then I decided to take my chances on nature.

I have never regretted my decision, despite the guilt when I realised that Rufus, and Oisín, now four, had both been affected.
(more…)

Professor urges new ways of viewing disability images

Saturday, March 15th, 2008

From the Daily Utah Chronicle (University of Utah’s independent student publication):

In a recent lecture at the University of Utah, Emory professor Rosemarie Garland-Thompson challenged her audience to decode public images of disability and analyze the cultural messages embedded within them. Her remarks were part of the university’s first annual Disability Studies Forum.

Among the images Garland-Thomson displayed were photographs of conjoined twin slaves, a paraplegic Playboy model, a Barbie doll that uses a wheelchair, and contemporary portraiture. She discussed how different techniques, such as posing in a different way, could give the subject of the portrait dignity, value and recognition.

(more…)

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More than 50 million people in the United States have disabilities, a number that is growing rapidly as the population ages. Experts say disability will soon affect the lives of most Americans. This blog attempts to explore what we know about disability, and to chronicle the efforts of people who are seeking new ways to address familiar challenges.

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