Chicago Sun-Times columnist Neil Steinberg says the word “retarded” may have started out as a clinical term, but it has been twisted into a taunt over the past half century and should be put to rest.

Were developmentally disabled people secure in the mainstream alongside the Irish and accountants, we could happily debate the cultural desirability of mocking them. But given that recognizing their full humanity is a fairly recent development, it seems that we should at least acknowledge that ridicule, though funny in entertainment, is destructive on a personal level.

…In 1953, Dale Evans, wife of cowboy star Roy Rogers, penned a book, Angel Unaware, about their daughter Robin, who was born with Down syndrome. Doctors told her to have Robin institutionalized. Instead Evans, inspired by her deep Christian faith, posed the little girl in family publicity photos. The book sold 400,000 copies in the mid-1950s, and parents who otherwise never let their children out of the house felt comfortable bringing them to Roy Rogers rodeos, because of his wife’s book.

They felt safe there.

I believe that any person with a heart, facing this complex issue, would rather err on the side of those children, would want them, not merely to get out of the house to see a cowboy show, but to also go to school with other kids and work at a job, if they could, still safe and accepted, without their lives being made a hell by would-be wits looking for someone to abuse.

Writing the New York Times ‘Diagnosis’ column,  Dr. Lisa Sanders ponders whether Sherlock Holmes might have had Asperger’s syndrome. The fictional private eye, to be featured in an upcoming film starring Robert Downey Jr., had many symptoms of the syndrome, she says, including an obsessive focus on narrow subjects, mood swings and an apparent inability to relate to others.

Sanders says author Arthur Conan Doyle, Holmes’ creator, trained as a physician and filled his stories with realistic medical description. Could he have based Holmes on patients he observed? “We may never know,” she says, “but clearly Holmes’s peculiarities have a persistent appeal.”

(Movie poster from imdb.com)

From USA Today:

Comedian Howie Mandel answers questions about his new book, “Here’s the Deal: Don’t Touch Me” , arriving in stores today. The book details his lifelong struggle with obsessive-compulsive disorder and attention-deficit hyperactivity disorder.

An excerpt:

Q: In your book, you say any public restroom freaks you out because of the germ factor. You write about not being able to take your daughter into one when she was a toddler. What are some of your other issues?

A: The difference between you and me is that even when I wash my hands, I can’t get it out of my mind that they’re not clean. I have to go back to the sink, I can’t even continue with my day. I have to leave the party, leave work. Those thoughts are so intrusive and on a continual loop that I can’t inhibit it. Everybody has irregular thoughts, but not like this.

Earlier post here.

(USA Today photo)

The [UK] Sunday Times carries an excerpt from Sarah Palin’s memoir in which she describes the “the problems and the joy of living with her special needs son.”

“Did I have enough love and compassion in me to do this? Don’t you have to be wired a little differently to be gifted with the ability to raise a special-needs child, a child who isn’t “perfect” in the eyes of society? I didn’t know if I should be ashamed of myself for even thinking these things.

“I read that almost 90% of Down’s syndrome babies are aborted — so wasn’t that a message that this is not only a less-than-ideal circumstance but also one that it is virtually impossible to deal with? Now, just a couple of hours into this new world, I could not get my arms or heart around it. That fleeting thought [abortion] descended on me again, not a consideration so much as a sudden understanding of why people would grasp at a quick ’solution’, a way to make the ‘problem’ just go away. But again, I had to hold on to that seed of faith.”

(Photo from the [UK] Sunday Times)

From the Baltimore Sun, Good Morning America, Fox News and elsewhere:

Mattie Stepanek was a boy with muscular dystrophy who wrote six best-selling books and inspired millions with his messages of hope and peace. He died five years ago just short of his fourteenth birthday.

Now his mother Jeni Stepanek, 50, has written a book about her son. “Messenger” tells the story of an ordinary boy who made extraordinary choices that led to meetings with celebrities and world leaders. Jeni Stepanek, who also has muscular dystrophy, says Mattie’s messages of peace did not end with his death. An excerpt of the book is here.

ABC’s segment included a reading of some of Mattie’s poems, including this one.

A New Hope

I need a hope … a new hope.
A hope that reaches for the stars, and
That does not end in violence or war.
A hope that makes peace on our earth, and
That does not create evil in the world.
A hope that finds cures for all diseases, and
That does not make people hurt.
In their bodies, in their hearts
Or most of all, in their spirits.
I need a hope … a new hope.
A hope that inspires me to live, and
To make all these things happen
So that the whole world can have
A new hope, too.

From the Washington Post:

Tim Page, author of “Parallel Play: Growing Up with Undiagnosed Asperger’s” and a Pulitzer Prize winning music critic, answers readers’ questions about Asperger’s syndrome and its effect on his life.

Some excerpts:

“The diagnosis was helpful in a lot of ways — mostly in explaining some of the things that had proved difficult, sometimes even impossible, for most of my life. And I didn’t exactly “give in” to the condition, but being aware that I had it helped me make smarter choices.

“… I also admire the radical new autism activists, such as Aspies for Freedom, who believe that autism and Asperger’s should be considered “differences” rather than afflictions. I have some mixed feelings about this –  although I do think some of the things I ended up doing were enabled by my Asperger’s Syndrome, I still wouldn’t wish it on anybody, for I’ve felt pretty unhappy a lot of my life. Still, I love their punchy, radical spirit — and who knows? Perhaps the depression and anxiety that seem to accompany most cases of AS wouldn’t be there if we didn’t always feel so strange.”

From “Fresh Air” on National Public Radio:

Music critic Tim Page didn’t find out that he had Asperger’s syndrome until he was 45, three years after winning the Pulitzer Prize. He writes in his new memoir, “Parallel Play: Life As An Outsider,” that the diagnosis helped him to accept parts of his nature that were “not very changeable.”

Page says he acted out when he was young and constantly struggled to understand social norms. He found a refuge in the repeating patterns in music.

“I have this theory that Asperger’s syndrome has been hugely important for me with music, because it was the first world that made any sense to me. I didn’t really understand what was going on around me, I didn’t understand what people really wanted me to do. I was a very lost little kid. But my mom had this record player ….

“It allowed me passage into a world where everything made sense and where I felt this profound sense of being at home in the world.”

Related posts here.