Newsweek reexamines anxieties surrounding autism, a mystery with no known cause. The uncertainty is fueling an ongoing vaccine debate and harsh divisions within the autism community about how to view and treat the disorder. While some feel that autism is a disease in need of a cure, others are calling for neurodiversity, the idea that differences in human behavior should be celebrated.
“Our feeling is that the autism spectrum is an intrinsic part of our personality that cannot be separated,” says [Ari] Ne’eman, [president of the Autistic Self-Advocacy Network and a 20-year-old university student with Asperger's syndrome.]
And he worries about research that might one day locate genes and other markers that could help doctors test for autism. Researchers say such knowledge would allow them to intervene early, during a critical window of development in the first year of life. Ne’eman’s fear? That autism will become like Down syndrome—essentially selected out of the population.
An accompanying chart of NIH research funding shows autism is expected to receive $128 million this year, or approximately $85.33 for each of the 1.5 million people diagnosed.
Of the conditions named, Down syndrome receives the smallest amount of research funds, both in the aggregate and on a per capita basis, with a total of $17 million or $48.57 per person diagnosed.
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