<?xml version="1.0" encoding="UTF-8"?>
<rss version="2.0"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
	xmlns:wfw="http://wellformedweb.org/CommentAPI/"
	xmlns:dc="http://purl.org/dc/elements/1.1/"
	xmlns:atom="http://www.w3.org/2005/Atom"
	xmlns:sy="http://purl.org/rss/1.0/modules/syndication/"
	xmlns:slash="http://purl.org/rss/1.0/modules/slash/"
	>

<channel>
	<title>Disability News &#124; PatriciaEBauer.com &#187; ALS</title>
	<atom:link href="http://www.patriciaebauer.com/category/als/feed/" rel="self" type="application/rss+xml" />
	<link>http://www.patriciaebauer.com</link>
	<description>Disability News &#124; PatriciaEBauer.com</description>
	<lastBuildDate>Fri, 30 Jul 2010 04:32:08 +0000</lastBuildDate>
	<generator>http://wordpress.org/?v=2.9</generator>
	<language>en</language>
	<sy:updatePeriod>hourly</sy:updatePeriod>
	<sy:updateFrequency>1</sy:updateFrequency>
			<item>
		<title>Health care reinstated for Canadian woman</title>
		<link>http://www.patriciaebauer.com/2009/01/31/health-care-8851/</link>
		<comments>http://www.patriciaebauer.com/2009/01/31/health-care-8851/#comments</comments>
		<pubDate>Sat, 31 Jan 2009 13:33:04 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[ALS]]></category>
		<category><![CDATA[Asperger's]]></category>
		<category><![CDATA[caregivers]]></category>
		<category><![CDATA[health aides/direct support workers]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[France Gelinas]]></category>
		<category><![CDATA[Mike Harris]]></category>
		<category><![CDATA[Minna Mettinen-Kekalainen]]></category>
		<category><![CDATA[National Democratic Party]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=8851</guid>
		<description><![CDATA[From CTV Toronto, Sudbury [Ontario] Star:
Minna Mettinen-Kekalainen of Sudbury, Ontario, who lost home health care over two months ago, will have her services reinstated on Monday. She has ALS and Asperger&#8217;s syndrome. Officials stepped in to work out a solution after home health nurses stopped treating Mettinen-Kekalainen due to &#8220;erratic behavior.&#8221;
France Gelinas, a member of [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2009/01/31/health-care-8851/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Editorial: &#8216;Giving up can&#8217;t be a solution&#8217;</title>
		<link>http://www.patriciaebauer.com/2009/01/24/editorial-giving-up-8331/</link>
		<comments>http://www.patriciaebauer.com/2009/01/24/editorial-giving-up-8331/#comments</comments>
		<pubDate>Sun, 25 Jan 2009 01:04:03 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[ALS]]></category>
		<category><![CDATA[Asperger's]]></category>
		<category><![CDATA[caregivers]]></category>
		<category><![CDATA[chronic illness]]></category>
		<category><![CDATA[end of life]]></category>
		<category><![CDATA[health care]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[North East Community Care Access Centre]]></category>
		<category><![CDATA[Richard Joly]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=8331</guid>
		<description><![CDATA[An editorial in the Sudbury [Ontario] Star calls for swift action in the case of a woman with ALS and Asperger&#8217;s who is living in unhealthy conditions after being denied home care by a government-funded contractor. Minna Mettinen-Kekalainen says she was dropped after she threatened to report nurses who did not follow doctor-prescribed procedures.
An excerpt:
With [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2009/01/24/editorial-giving-up-8331/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Ontario woman with ALS says she&#8217;s being denied home care</title>
		<link>http://www.patriciaebauer.com/2009/01/23/ontario-woman-with-als-says-shes-being-denied-home-care-8228/</link>
		<comments>http://www.patriciaebauer.com/2009/01/23/ontario-woman-with-als-says-shes-being-denied-home-care-8228/#comments</comments>
		<pubDate>Fri, 23 Jan 2009 20:01:22 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[ALS]]></category>
		<category><![CDATA[Asperger's]]></category>
		<category><![CDATA[caregivers]]></category>
		<category><![CDATA[chronic illness]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[nursing care]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=8228</guid>
		<description><![CDATA[Stories in the Sudbury [Ontario] Star are here and here and here:
Minna Mettinen-Kekalainen, a 42-year-old Ontario woman who has ALS, says she is being denied home care by a government-funded contractor and as a consequence is being forced to live in conditions that are inhumane.
Mettinen-Kekalainen, who also has Asperger&#8217;s syndrome, began a hunger strike last [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2009/01/23/ontario-woman-with-als-says-shes-being-denied-home-care-8228/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Kennedy-Brownback bill dies in Senate spending showdown</title>
		<link>http://www.patriciaebauer.com/2008/07/28/kennedy-brownback-2821/</link>
		<comments>http://www.patriciaebauer.com/2008/07/28/kennedy-brownback-2821/#comments</comments>
		<pubDate>Mon, 28 Jul 2008 23:18:49 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[ALS]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[PB Articles & Essays]]></category>
		<category><![CDATA[abortion]]></category>
		<category><![CDATA[funding]]></category>
		<category><![CDATA[politics]]></category>
		<category><![CDATA[prenatal diagnosis]]></category>
		<category><![CDATA[disability news and commentary]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[prenatal testing]]></category>
		<category><![CDATA[Sen. Edward M. Kennedy]]></category>
		<category><![CDATA[Sen. Harry Reid]]></category>
		<category><![CDATA[Sen. Sam Brownback]]></category>
		<category><![CDATA[Sen. Tom Coburn]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=2821</guid>
		<description><![CDATA[From C-Span, CBS News, the Associated Press, the New York Times, the Washington Post, WashingtonWatch.com and elsewhere:
A bill aimed at providing accurate and comprehensive information to parents who receive a diagnosis of a disability for their child, either prenatally or after birth, died today in a massive Senate showdown over federal spending.
Senate Bill 1810 was [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2008/07/28/kennedy-brownback-2821/feed/</wfw:commentRss>
		<slash:comments>5</slash:comments>
		</item>
		<item>
		<title>Additional items for Sunday, July 27, 2008</title>
		<link>http://www.patriciaebauer.com/2008/07/27/additional-items-4-2817/</link>
		<comments>http://www.patriciaebauer.com/2008/07/27/additional-items-4-2817/#comments</comments>
		<pubDate>Mon, 28 Jul 2008 00:34:57 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[ADHD]]></category>
		<category><![CDATA[ALS]]></category>
		<category><![CDATA[Asperger's]]></category>
		<category><![CDATA[Down syndrome]]></category>
		<category><![CDATA[cancer]]></category>
		<category><![CDATA[dyslexia]]></category>
		<category><![CDATA[end of life]]></category>
		<category><![CDATA[exercise/sports]]></category>
		<category><![CDATA[general news]]></category>
		<category><![CDATA[group homes]]></category>
		<category><![CDATA[housing]]></category>
		<category><![CDATA[institutionalization]]></category>
		<category><![CDATA[religion]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=2817</guid>
		<description><![CDATA[

Inspiring Professor Randy Pausch dies &#8211; ABC Good Morning America (cancer, end of life)
Randy Pausch dies; His last lecture inspired many to live with wonder &#8212; New York Times (cancer, end of life)
Remembering Randy Pausch’s last lecture &#8212; National Public Radio (cancer, end of life)

Faith community works to include disabled — Augusta [GA] Chronicle
Charlotte has [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2008/07/27/additional-items-4-2817/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Long-term ALS survivor demands to be heard</title>
		<link>http://www.patriciaebauer.com/2008/05/04/long-term-als-survivor-demands-to-be-heard-2067/</link>
		<comments>http://www.patriciaebauer.com/2008/05/04/long-term-als-survivor-demands-to-be-heard-2067/#comments</comments>
		<pubDate>Sun, 04 May 2008 22:12:46 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[ALS]]></category>
		<category><![CDATA[advocacy]]></category>
		<category><![CDATA[research funding]]></category>
		<category><![CDATA[research news]]></category>
		<category><![CDATA[social security]]></category>
		<category><![CDATA[Chris Pendergast]]></category>
		<category><![CDATA[disability news and commentary]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=2067</guid>
		<description><![CDATA[From the New York Times:
When Chris Pendergast was diagnosed with amyotrophic lateral sclerosis (Lou Gehrig&#8217;s disease) in 1993, he wasn&#8217;t expected to live long. Now, almost fifteen years later, he&#8217;s using his long-term survivorship to draw attention to the need for more ALS research and immediate access to Medicare and Social Security benefits. His foundation, [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2008/05/04/long-term-als-survivor-demands-to-be-heard-2067/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>Practicing patients</title>
		<link>http://www.patriciaebauer.com/2008/03/22/practicing-patients-1804/</link>
		<comments>http://www.patriciaebauer.com/2008/03/22/practicing-patients-1804/#comments</comments>
		<pubDate>Sun, 23 Mar 2008 01:52:56 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[ALS]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[chronic illness]]></category>
		<category><![CDATA[drugs]]></category>
		<category><![CDATA[medicine]]></category>
		<category><![CDATA[multiple sclerosis]]></category>
		<category><![CDATA[parkinson's]]></category>
		<category><![CDATA[disabilities]]></category>
		<category><![CDATA[disability news]]></category>
		<category><![CDATA[disability news and commentary]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/2008/03/22/practicing-patients/</guid>
		<description><![CDATA[PatientsLikeMe, an Internet start-up, creates information-rich communities for the chronically ill. Is it the next step forward in medical science — or just a MySpace for the afflicted?
Writing in the New York Times Magazine, Thomas Goetz describes what happens when patients band together on the Internet to share their most intimate medical information, from symptoms [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2008/03/22/practicing-patients-1804/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Books: &#8216;Strong at the Broken Places&#8217;</title>
		<link>http://www.patriciaebauer.com/2008/01/05/books-strong-at-the-broken-places-1184/</link>
		<comments>http://www.patriciaebauer.com/2008/01/05/books-strong-at-the-broken-places-1184/#comments</comments>
		<pubDate>Sat, 05 Jan 2008 20:50:26 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[ALS]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[bipolar]]></category>
		<category><![CDATA[books]]></category>
		<category><![CDATA[cancer]]></category>
		<category><![CDATA[chronic illness]]></category>
		<category><![CDATA[multiple sclerosis]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/2008/01/05/books-strong-at-the-broken-places/</guid>
		<description><![CDATA[From the New York Daily News and MSNBC, news about a book by Richard M. Cohen, bestselling author whose earlier memoir &#8216;Blindsided&#8217; gave readers an insight into his life with multiple sclerosis and colon cancer.
Ninety million Americans live with chronic illness. In his latest effort, Cohen helps readers explore their world by documenting the journeys [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2008/01/05/books-strong-at-the-broken-places-1184/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>The view from the other side: Patients, doctors and the power of a camera</title>
		<link>http://www.patriciaebauer.com/2007/12/19/the-view-from-the-other-side-patients-doctors-and-the-power-of-a-camera-1058/</link>
		<comments>http://www.patriciaebauer.com/2007/12/19/the-view-from-the-other-side-patients-doctors-and-the-power-of-a-camera-1058/#comments</comments>
		<pubDate>Thu, 20 Dec 2007 01:24:56 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[ALS]]></category>
		<category><![CDATA[NOT2BEMISSED]]></category>
		<category><![CDATA[first-person]]></category>
		<category><![CDATA[health care]]></category>
		<category><![CDATA[multiple sclerosis]]></category>
		<category><![CDATA[personal stories]]></category>
		<category><![CDATA[wheelchair]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/2007/12/19/the-view-from-the-other-side-patients-doctors-and-the-power-of-a-camera/</guid>
		<description><![CDATA[By Gretchen Berland, M.D., in the New England Journal of Medicine. Access to this article is free.
Berland is a documentary-filmmaker-turned-internist as well as an assistant professor of medicine at Yale University School of Medicine. She recently completed  a  lengthy project that culminated in the film &#8220;Rolling,&#8221;  documenting the lives of three people [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2007/12/19/the-view-from-the-other-side-patients-doctors-and-the-power-of-a-camera-1058/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
		</item>
		<item>
		<title>More Sunday stories</title>
		<link>http://www.patriciaebauer.com/2007/07/29/more-sunday-stories-77/</link>
		<comments>http://www.patriciaebauer.com/2007/07/29/more-sunday-stories-77/#comments</comments>
		<pubDate>Sun, 29 Jul 2007 14:29:00 +0000</pubDate>
		<dc:creator>Patricia Bauer</dc:creator>
				<category><![CDATA[ALS]]></category>
		<category><![CDATA[alzheimer's]]></category>
		<category><![CDATA[research news]]></category>
		<category><![CDATA[transportation]]></category>

		<guid isPermaLink="false">http://www.patriciaebauer.com/2007/07/29/more-sunday-stories/</guid>
		<description><![CDATA[&#8211; Alzheimer&#8217;s advocates counter misconceptions among minority communities. From the Boston Globe. The campaign is part of an effort to address cultural barriers to dementia care among African-Americans, Asian-Americans, Latinos and other groups.
&#8220;Driving the initiatives is concern that increasing numbers of African-Americans and Latinos are at high risk of Alzheimer&#8217;s and other types of dementia [...]]]></description>
		<wfw:commentRss>http://www.patriciaebauer.com/2007/07/29/more-sunday-stories-77/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
		</item>
	</channel>
</rss>
