Comments on: Caregivers worry: Will rise in adults with autism swamp system? http://www.patriciaebauer.com/2009/06/29/adults-with-autism-19322/ Disability News | PatriciaEBauer.com Wed, 24 Nov 2010 22:50:59 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: abby http://www.patriciaebauer.com/2009/06/29/adults-with-autism-19322/comment-page-1/#comment-4430 abby Wed, 01 Jul 2009 02:48:06 +0000 http://www.patriciaebauer.com/?p=19322#comment-4430 "For them, a sensible emphasis has been placed upon prevention in the future, and respite and amelioration in the present." What a truly chilling statement. Not even sure I can wrap my brain around a reply to that. Let me say this, at least: my life contains a hell of a lot more than "respite and amelioration". My daughter just turned three. We felt "sensible" when we opted not to do any prenatal screening or testing, figuring life has no guarantees, and there are a lot of other things that can happen that we can't test for (yet??). We live a good life, and my daughter's Down syndrome has opened us up to a whole universe of people and thoughts we might never have had the opportunity to experience. Yes, there are challenges, of course, but there is also a lot of life that is just the way I would wish for it to be. “For them, a sensible emphasis has been placed upon prevention in the future, and respite and amelioration in the present.”

What a truly chilling statement. Not even sure I can wrap my brain around a reply to that. Let me say this, at least: my life contains a hell of a lot more than “respite and amelioration”. My daughter just turned three. We felt “sensible” when we opted not to do any prenatal screening or testing, figuring life has no guarantees, and there are a lot of other things that can happen that we can’t test for (yet??).

We live a good life, and my daughter’s Down syndrome has opened us up to a whole universe of people and thoughts we might never have had the opportunity to experience. Yes, there are challenges, of course, but there is also a lot of life that is just the way I would wish for it to be.

]]> By: Care Giver http://www.patriciaebauer.com/2009/06/29/adults-with-autism-19322/comment-page-1/#comment-4427 Care Giver Tue, 30 Jun 2009 18:33:57 +0000 http://www.patriciaebauer.com/?p=19322#comment-4427 Pretty scary stuff. Hopefully we'll be able to do more than just throw galas for the many children with autism who are now becoming adults. Pretty scary stuff. Hopefully we’ll be able to do more than just throw galas for the many children with autism who are now becoming adults.

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