People with DS raise concerns about prenatal testing in Quebec
June 5th, 2009From CBC News:
As Quebec’s health minister considers a proposal for universal prenatal testing for Down syndrome, people with the condition are challenging him to meet and talk with them before making a decision. They say universal testing would be discriminatory.
“There wouldn’t be any more people like me,” said Maude Richard, speaking in French.
According to Quebec’s Health and Welfare Commission, most people in the province favor making amniocentesis available to all pregnant women regardless of age.
A teary-eyed Roselyne Chevrette told CBC News she is proud that her mother chose to have her.
She said that telling parents they can screen for Down syndrome sends the wrong message about people like her, and creates even more prejudice.
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June 5th, 2009 at 10:14 pm
The article ends with the point that begs our consideration: there is not enough unbiased, accurate information for parents to make and informed choice about the test. Informed decision-making is what I’d like to see more of.