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Parents finding more support for pregnancies with disabilities

May 12th, 2009

From the Washington Times:

An informal support network is organizing to assist prospective parents who have received prenatal diagnoses of disabilities. The dilemma of these parents was not widely discussed until last fall, when GOP vice presidential hopeful Sarah Palin talked about refusing to abort her son Trig, who has Down syndrome.

Parents now say they feel pressure from doctors and others to terminate their pregnancies. The Prenatally and Postnatally Diagnosed Conditions Awareness Act, signed last year by President Bush, was designed to provide women with accurate information about their child’s condition. But doctors are dubious about whether the measure has had much of an impact on the way medicine is practiced.

“The medical community has not been aware of alternatives,” says Dr. Byron Calhoun, vice president of the obstetrics and gynecology department at West Virginia University in Charleston. “The only alternative parents are given is termination of pregnancy or they’re told they are on their own.”

… “People think your life is over when you have a handicapped child,” [said Dan] LaHood. “It’s a cultural view to eliminate them as undesirable. They don’t know what the demands are and what the rewards are.”

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More than 50 million people in the United States have disabilities, a number that is growing rapidly as the population ages. Experts say disability will soon affect the lives of most Americans. This website attempts to aggregate news and commentary about disability, and to document the efforts of people who are seeking new ways to address familiar challenges.

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