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Op-ed: A mom reflects on life with a disability

April 22nd, 2009

Mary Jo Hebert, writing in the Albany Times Union, is the mother of a 17-year-old son with “a slew of disabilities no one saw coming.” She says her journey has taught her many lessons; among them: resilience, flexibility and love. An excerpt:

I learned that the only good reason to have a child is to raise a decent human being – the underachievers as well as the overachievers – and if you’re counting on producing an athlete or scholar, you better think again. Three quarters of young couples in a recent survey said they would choose abortion if told their fetus had a 50 percent chance of growing up to be obese. If you’re one of them, don’t take the risk.

I learned to expect the unexpected, a good reminder for anyone considering parenthood. On what should have been one of the happiest days of my life, I received the worst possible news, and here’s the part worth noting: I survived.

I pieced back together my broken heart and found a way to enjoy life anyway. I tossed out the old yardsticks for measuring success and created new ones.

In a culture that turns athletes into heroes and defines beauty as perfection, I learned to love a child who is slow, clumsy and imperfect.

I built a new life with different expectations. And I learned a new definition of what it means to have something in the family: the courage it takes to let go of the child you want to embrace the child you get.

3 Responses to “Op-ed: A mom reflects on life with a disability”

  1. Scott Says:

    This reminded me a bit of the “Welcome to Holland” poem.

    I wonder what the author’s sister-in-law thought when she read it.

  2. Jawanda Mast Says:

    Terrific piece, Mary Jo Hebert with some great reminders for everyone. A great reminder that perfection is truly an American-made illusion. Thanks for sharing.

  3. EB Says:

    Terrific piece that everyone considering having children ought to read.

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More than 50 million people in the United States have disabilities, a number that is growing rapidly as the population ages. Experts say disability will soon affect the lives of most Americans. This website attempts to aggregate news and commentary about disability, and to document the efforts of people who are seeking new ways to address familiar challenges.

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