Op-ed: A mom reflects on life with a disability
April 22nd, 2009Mary Jo Hebert, writing in the Albany Times Union, is the mother of a 17-year-old son with “a slew of disabilities no one saw coming.” She says her journey has taught her many lessons; among them: resilience, flexibility and love. An excerpt:
I learned that the only good reason to have a child is to raise a decent human being – the underachievers as well as the overachievers – and if you’re counting on producing an athlete or scholar, you better think again. Three quarters of young couples in a recent survey said they would choose abortion if told their fetus had a 50 percent chance of growing up to be obese. If you’re one of them, don’t take the risk.
I learned to expect the unexpected, a good reminder for anyone considering parenthood. On what should have been one of the happiest days of my life, I received the worst possible news, and here’s the part worth noting: I survived.
I pieced back together my broken heart and found a way to enjoy life anyway. I tossed out the old yardsticks for measuring success and created new ones.
In a culture that turns athletes into heroes and defines beauty as perfection, I learned to love a child who is slow, clumsy and imperfect.
I built a new life with different expectations. And I learned a new definition of what it means to have something in the family: the courage it takes to let go of the child you want to embrace the child you get.


April 23rd, 2009 at 8:46 am
This reminded me a bit of the “Welcome to Holland” poem.
I wonder what the author’s sister-in-law thought when she read it.
April 22nd, 2009 at 10:36 am
Terrific piece, Mary Jo Hebert with some great reminders for everyone. A great reminder that perfection is truly an American-made illusion. Thanks for sharing.
April 22nd, 2009 at 8:26 am
Terrific piece that everyone considering having children ought to read.