Rep. Harper promotes Fragile X awareness, research
March 9th, 2009
From The Hill:
Representative Gregg Harper (R-Miss.), whose son has Fragile X syndrome, welcomed advocates for people with the condition to Capitol Hill last week. Their goal: To raise awareness for the condition and pressure Congress for medical research funding.
The event was attended by 130 advocates from 35 states.
“We just want to make sure that when they are slicing up the pie that Fragile X is looked at, because it hasn’t gotten as much as it needs,” said Harper, who said he is the only member of Congress who has a child with Fragile X.
He described his son Livingston as “a blessing on everybody’s life.” Nineteen-year-old Livingston goes to community college and works in a restaurant.
See also: Gregg Harper launches PSA on Fragile X syndrome – The Meridian [MS] Star
Video of the public service announcement is here.
(Photo from greggharperforcongress.com)
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