Guest commentary: A call to the disability community
December 24th, 2008Elevate disability policy within the White House Domestic Policy Council
From Rud and Ann Turnbull, co-founders and co-directors
Beach Center on Disability
The University of Kansas
Background
The audacity of hope lies in the heart of the disability community.
The insistence on rights is still part of its daily agenda.
As individuals with disabilities and their families perform their civic responsibilities, they prove that rights create opportunities for effective citizenship.
The integration of disability policy into other policies can threaten individuals and families affected by disabilities; there are no assurances that policy reforms will always be disability-sensitive and provide for reasonable accommodations or other means for equal treatment.
But the integration of disability policy also creates opportunities because policy-integration advances integration and full participation of people with disabilities.
Individuals with disabilities and their families need a change they can believe in – a change that only President Obama and his leadership team can offer.
They need the opportunity to participate as equals in domestic policy debates.
So, we propose elevating disability policy.
Proposal
The President should create a Disability Policy Section within the White House Domestic Policy Council.
The Disability Policy Section should have the same status, opportunities, responsibilities, and staffing as policy sections related to all other major areas of domestic policy.
In particular, it should have the opportunity and responsibility to participate in all other units of the Council to develop new or assure the vigorous implementation of current policy.
To these ends, it should have leadership with the same expertise as the other sections related to domestic policy.
To the maximum extent practicable, it should be directed and staffed by individuals who have disabilities and are parents or other close family members of individuals with disabilities.
That kind of staffing will acknowledge that families are the core units of society and that attaining the nation’s four disability policy goals – equal opportunity, economic self-sufficiency, independent living, and full participation – depends on the strength of families as much as on the opportunities for and strength of people with disabilities.
Accordingly, it should be directed by an individual who has extensive experience in developing disability policy as a result of service in Congress, as a senior member of the staff of a Congressional committee with jurisdiction over disability policy, or as a member of an executive agency responsible for implementing disability policy.
Further, its director or the director’s designee should have ex officio membership on such existing federal commissions and committees as the National Council on Disability, the President’s Commission on People with Intellectual Disability, and comparable entities.
If you agree in substance with our proposal, please contact:
• Melody.barnes@ptt.gov
• Heather.higgenbottom@ptt.gov
They are members of the transition team charged with domestic policy work.



March 10th, 2009 at 6:01 pm
I’m more concerned about what they are doing to help, rather that how many more agencies that they can create.
I need to find a viable, living wage home job or business. I spend 20/hrs a day trying to find some actual help. I’m unable to do telephone work. I’m able to do just about everything that everyone does.
I do not need more red tape or lip service. I do not need any more “training” or “education”. I do not need any technical assistance. I do not need any more handicapped signs. I do not need any ramps. I do not need any home services. I do not need to make a jillion dollars a day. I do not need an “easy” job. I do not need to have scammers email me. I do not need any more harmful mandated medical “treatments”. And I surely do not need any more agencies, to tell me that they refuse any help at all.
Hint, Pres. Obama: Please train the government agencies so that they will be able to find the correct resources to help. I have gotten downright lies from these people, and this illusion that there is someone, somewhere to do their own jobs is why they are discriminating against the pwd. If they are good at something, it is passing the buck. And please fight the urge to make yet another agency to find resources for the disabled. You already have that — and they are worthless.