Comments on: One mom shares experience with DS http://www.patriciaebauer.com/2008/10/23/one-mom-shares-3790/ Disability News | PatriciaEBauer.com Wed, 24 Nov 2010 22:50:59 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: catherine http://www.patriciaebauer.com/2008/10/23/one-mom-shares-3790/comment-page-1/#comment-3017 catherine Fri, 24 Oct 2008 20:25:05 +0000 http://www.patriciaebauer.com/?p=3790#comment-3017 Message for Hallie. Enjoy your baby and do not be scared about the medical stuff about leukemia . yes there is a higher risk but most people with Ds do not get it, and those who do nearly all make a good recovery. Don't be scared about shortened life spans. These statistics are our of date and based on an average life expectancy by adding in those babies in the past who had heart defects and did not survive. Nowadays , the outlook is much better for babies with heart defects and there are more and more cases being reported of people with DS living into their 60s and 70s. My daughter with DS is 29 and lives a very full and happy life, despite having very ordinary common or garden DS, and with no particular academic triumphs. Yet she travels alone by public transport in a city of 8 million people and lives in her own flat with support, and enjoys being an eternal student. Catherine Message for Hallie. Enjoy your baby and do not be scared about the medical stuff about leukemia . yes there is a higher risk but most people with Ds do not get it, and those who do nearly all make a good recovery.

Don’t be scared about shortened life spans. These statistics are our of date and based on an average life expectancy by adding in those babies in the past who had heart defects and did not survive. Nowadays , the outlook is much better for babies with heart defects and there are more and more cases being reported of people with DS living into their 60s and 70s.

My daughter with DS is 29 and lives a very full and happy life, despite having very ordinary common or garden DS, and with no particular academic triumphs. Yet she travels alone by public transport in a city of 8 million people and lives in her own flat with support, and enjoys being an eternal student.

Catherine

]]> By: Jeff Goble http://www.patriciaebauer.com/2008/10/23/one-mom-shares-3790/comment-page-1/#comment-2996 Jeff Goble Thu, 23 Oct 2008 19:42:02 +0000 http://www.patriciaebauer.com/?p=3790#comment-2996 Ultimately, at the end of the day, it's my daughter who changes everything. She's the one that won me over, who's the authority on love and life and what's really important. I do so understand that passage. Ultimately, at the end of the day, it’s my daughter who changes everything. She’s the one that won me over, who’s the authority on love and life and what’s really important. I do so understand that passage.

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