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Adults with disabilities: What happens when parents die?

October 13th, 2008

From the Atlanta Journal-Constitution:

A growing generation of parents is now facing old age and the prospect that their children with disabilities will outlive them. As of 2006, more than 716,000 adults with developmental disabilities were living with caregivers over the age of 60 in the United States.

Caregivers say they worry about an uncertain future for their family members, and advocates say this concern is magnified by a system with limited safety nets and the prospect of impending cuts in services for adults with developmental disabilities.

Waiting lists for social services are long, with some 6,300 people waiting in Georgia. Some have been waiting for years.

“Elderly parents have cared for their children their whole lives without support,” said Pat Nobbie, deputy director of the Georgia Governor’s Council on Developmental Disabilities. “When they need it, the state needs to be there to help them.”

(Atlanta Journal-Constitution photo: Marilyn Humphreys (left) cares for daughter Jenny, 32, who uses a communication device to speak.)

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More than 50 million people in the United States have disabilities, a number that is growing rapidly as the population ages. Experts say disability will soon affect the lives of most Americans. This website attempts to aggregate news and commentary about disability, and to document the efforts of people who are seeking new ways to address familiar challenges.

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