Comments on: Special needs planning — What happens when parents die? http://www.patriciaebauer.com/2008/10/09/special-needs-planners-3412/ Disability News | PatriciaEBauer.com Wed, 24 Nov 2010 22:50:59 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Shelley Patterson http://www.patriciaebauer.com/2008/10/09/special-needs-planners-3412/comment-page-1/#comment-5073 Shelley Patterson Fri, 20 Nov 2009 19:30:12 +0000 http://www.patriciaebauer.com/?p=3412#comment-5073 That is my boss, Barry Nelson (quoted in the article) and his son, Jesse, on their Buddy Bike. A trust in Jesse's name owns Buddy Bike, LLC and the bicycle patent. Thank you for sharing these articles of interest for the special needs community. Shelley at Buddy Bike That is my boss, Barry Nelson (quoted in the article) and his son, Jesse, on their Buddy Bike. A trust in Jesse’s name owns Buddy Bike, LLC and the bicycle patent. Thank you for sharing these articles of interest for the special needs community. Shelley at Buddy Bike

]]> By: Pamela Wilson http://www.patriciaebauer.com/2008/10/09/special-needs-planners-3412/comment-page-1/#comment-2916 Pamela Wilson Fri, 17 Oct 2008 14:37:44 +0000 http://www.patriciaebauer.com/?p=3412#comment-2916 Wills and trusts are important for babies and very young children with disabilities, too. I recall hearing one attorney mention that if both parents are lost, the first relative to arrive can take the children home with them and a custody battle may ensue if other family members try to intervene. A will needs to be written with a reference to a special needs trust for the sibling with a disability, as I recall. Grandparents need to be aware of the special needs trust aspect for their wills, too, and might appreciate copies of a good article or a list of resources to show their attorneys. Most lawyers will have had no experience with families of children with disabilities. We also need to consider what happens as parents age, not just when we are gone. We want our sons and daughters to enjoy spending time with us in our older years, and they want us to be there and healthy while marking milestones and during times of celebration. We can also write a letter describing significant people in our children's lives who we don't want them to lose when we are gone. We might want our aging children to visit us if we find ourselves in an assisted living facility without convenient, inexpensive or available transportation. Future planning means considering joyful times as well as sad events -- and the ordinary pleasures that we find day to day. Pam W SE of Seattle Disability and Future Planning for Parents http://www.bellaonline.com/articles/art59032.asp Wills and trusts are important for babies and very young children with disabilities, too. I recall hearing one attorney mention that if both parents are lost, the first relative to arrive can take the children home with them and a custody battle may ensue if other family members try to intervene. A will needs to be written with a reference to a special needs trust for the sibling with a disability, as I recall. Grandparents need to be aware of the special needs trust aspect for their wills, too, and might appreciate copies of a good article or a list of resources to show their attorneys. Most lawyers will have had no experience with families of children with disabilities.

We also need to consider what happens as parents age, not just when we are gone. We want our sons and daughters to enjoy spending time with us in our older years, and they want us to be there and healthy while marking milestones and during times of celebration. We can also write a letter describing significant people in our children’s lives who we don’t want them to lose when we are gone. We might want our aging children to visit us if we find ourselves in an assisted living facility without convenient, inexpensive or available transportation.

Future planning means considering joyful times as well as sad events — and the ordinary pleasures that we find day to day.

Pam W
SE of Seattle

Disability and Future Planning for Parents
http://www.bellaonline.com/articles/art59032.asp

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