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	<title>Comments on: Paul Longmore: An open letter to disability rights constituency</title>
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	<link>http://www.patriciaebauer.com/2008/09/15/paul-longmore-open-lette-3205/</link>
	<description>Disability News &#124; PatriciaEBauer.com</description>
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		<title>By: Jocelyn Gallant</title>
		<link>http://www.patriciaebauer.com/2008/09/15/paul-longmore-open-lette-3205/comment-page-1/#comment-3924</link>
		<dc:creator>Jocelyn Gallant</dc:creator>
		<pubDate>Wed, 25 Mar 2009 23:17:03 +0000</pubDate>
		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=3205#comment-3924</guid>
		<description>Obama made the promise that he will be an advocate for people with disabilities, but it turns out he&#039;s advocating for AIG and big business.

I thought I had trust in him. No more.

Salem, New Hampshire</description>
		<content:encoded><![CDATA[<p>Obama made the promise that he will be an advocate for people with disabilities, but it turns out he&#8217;s advocating for AIG and big business.</p>
<p>I thought I had trust in him. No more.</p>
<p>Salem, New Hampshire</p>
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		<title>By: BeckyinMO</title>
		<link>http://www.patriciaebauer.com/2008/09/15/paul-longmore-open-lette-3205/comment-page-1/#comment-3122</link>
		<dc:creator>BeckyinMO</dc:creator>
		<pubDate>Mon, 03 Nov 2008 10:17:37 +0000</pubDate>
		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=3205#comment-3122</guid>
		<description>To Peggy, who says that Governor Palin doesn&#039;t have a clue what raising a child with autism is like, please note that Governor Palin has a 13 year old nephew with autism.</description>
		<content:encoded><![CDATA[<p>To Peggy, who says that Governor Palin doesn&#8217;t have a clue what raising a child with autism is like, please note that Governor Palin has a 13 year old nephew with autism.</p>
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		<title>By: Anonymous</title>
		<link>http://www.patriciaebauer.com/2008/09/15/paul-longmore-open-lette-3205/comment-page-1/#comment-3118</link>
		<dc:creator>Anonymous</dc:creator>
		<pubDate>Sun, 02 Nov 2008 22:34:14 +0000</pubDate>
		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=3205#comment-3118</guid>
		<description>Obama&#039;s record is proof he doesn&#039;t have anyone with disabilities in his best interest. He supports and advocates the murder of unborn children including those with disabilities ... I don&#039;t trust him on anything, much less disability rights. When it comes to the rights of the disabled, I trust Sarah Palin over Obama.</description>
		<content:encoded><![CDATA[<p>Obama&#8217;s record is proof he doesn&#8217;t have anyone with disabilities in his best interest. He supports and advocates the murder of unborn children including those with disabilities &#8230; I don&#8217;t trust him on anything, much less disability rights. When it comes to the rights of the disabled, I trust Sarah Palin over Obama.</p>
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		<title>By: M. Rappaport</title>
		<link>http://www.patriciaebauer.com/2008/09/15/paul-longmore-open-lette-3205/comment-page-1/#comment-3086</link>
		<dc:creator>M. Rappaport</dc:creator>
		<pubDate>Fri, 31 Oct 2008 06:32:05 +0000</pubDate>
		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=3205#comment-3086</guid>
		<description>I am writing this to pose a question: to what extent has either candidate and/or their party supported more funding for Accessible Technology please?   Thank you.

Mitchell</description>
		<content:encoded><![CDATA[<p>I am writing this to pose a question: to what extent has either candidate and/or their party supported more funding for Accessible Technology please?   Thank you.</p>
<p>Mitchell</p>
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		<title>By: Jessica</title>
		<link>http://www.patriciaebauer.com/2008/09/15/paul-longmore-open-lette-3205/comment-page-1/#comment-3021</link>
		<dc:creator>Jessica</dc:creator>
		<pubDate>Fri, 24 Oct 2008 23:56:06 +0000</pubDate>
		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=3205#comment-3021</guid>
		<description>Insurance discrimination based upon disability is already prohibited by the Americans with Disabilities Act. Lack of enforcement of the ADA by states who permit insurance companies to discriminate is the reason this practice continues ... there is no downside to the insurance companies for doing so.

The 40% of &quot;full funding&quot; as promised by the original IDEA (the Education for All Handicapped Children Act of 1975) was for 40% of the EXCESS COSTS of educating these children, not 40% of the total costs. Furthermore, it is Congress that appropriates the money for the IDEA -- so blame our federal legislators, not the executive branch.</description>
		<content:encoded><![CDATA[<p>Insurance discrimination based upon disability is already prohibited by the Americans with Disabilities Act. Lack of enforcement of the ADA by states who permit insurance companies to discriminate is the reason this practice continues &#8230; there is no downside to the insurance companies for doing so.</p>
<p>The 40% of &#8220;full funding&#8221; as promised by the original IDEA (the Education for All Handicapped Children Act of 1975) was for 40% of the EXCESS COSTS of educating these children, not 40% of the total costs. Furthermore, it is Congress that appropriates the money for the IDEA &#8212; so blame our federal legislators, not the executive branch.</p>
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		<title>By: amymdmom</title>
		<link>http://www.patriciaebauer.com/2008/09/15/paul-longmore-open-lette-3205/comment-page-1/#comment-2904</link>
		<dc:creator>amymdmom</dc:creator>
		<pubDate>Thu, 16 Oct 2008 19:03:26 +0000</pubDate>
		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=3205#comment-2904</guid>
		<description>In response to Peggy&#039;s statement:  &quot;Having a baby with Down syndrome does not make you an advocate for all children with special needs. I do not know of any adult person with Down’s that is physically aggressive, that cannot be toilet trained, or that is non-verbal.&quot;

In your claim that Gov. Palin couldn&#039;t possibly advocate for all children with special needs, it appears that you deem her statement as overbroad or reaching; however, your claim does the exact same thing regarding adults with a diagnosis of Down syndrome.
Just like there are many differences among people without disabilities, there are also many differences and a wide range of abilities, behaviors, traits and health issues among individuals who happen to have the same disability.  Avoid the &quot;Disability Hierarchy&quot; where someone compares one disability with another, it creates a class system among those who have no need of another imposed barrier. Over-generalizations are similar to stereotypes which we know are also harmful. Individuals with Down (no &#039;s) syndrome experience such a wide variety of characteristics that it could almost be argued that it follows a Spectrum as well....Ever heard of a Dual diagnosis, how about the rare but occuring Triple Play?</description>
		<content:encoded><![CDATA[<p>In response to Peggy&#8217;s statement:  &#8220;Having a baby with Down syndrome does not make you an advocate for all children with special needs. I do not know of any adult person with Down’s that is physically aggressive, that cannot be toilet trained, or that is non-verbal.&#8221;</p>
<p>In your claim that Gov. Palin couldn&#8217;t possibly advocate for all children with special needs, it appears that you deem her statement as overbroad or reaching; however, your claim does the exact same thing regarding adults with a diagnosis of Down syndrome.<br />
Just like there are many differences among people without disabilities, there are also many differences and a wide range of abilities, behaviors, traits and health issues among individuals who happen to have the same disability.  Avoid the &#8220;Disability Hierarchy&#8221; where someone compares one disability with another, it creates a class system among those who have no need of another imposed barrier. Over-generalizations are similar to stereotypes which we know are also harmful. Individuals with Down (no &#8217;s) syndrome experience such a wide variety of characteristics that it could almost be argued that it follows a Spectrum as well&#8230;.Ever heard of a Dual diagnosis, how about the rare but occuring Triple Play?</p>
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		<title>By: Peggy</title>
		<link>http://www.patriciaebauer.com/2008/09/15/paul-longmore-open-lette-3205/comment-page-1/#comment-2903</link>
		<dc:creator>Peggy</dc:creator>
		<pubDate>Thu, 16 Oct 2008 18:27:49 +0000</pubDate>
		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=3205#comment-2903</guid>
		<description>Having a baby with Down syndrome does not make you an advocate for all children with special needs. I do not know of any adult person with Down&#039;s that is physically aggressive, that cannot be toilet trained, or that is non-verbal. 

Palin does not have a CLUE what raising a child with autism is like. No one does unless they have, so I will certainly not be voting for her because of this! I will be voting for Obama because of many reasons but one is that he is involved with the autism community and has them included in his plans for the future.</description>
		<content:encoded><![CDATA[<p>Having a baby with Down syndrome does not make you an advocate for all children with special needs. I do not know of any adult person with Down&#8217;s that is physically aggressive, that cannot be toilet trained, or that is non-verbal. </p>
<p>Palin does not have a CLUE what raising a child with autism is like. No one does unless they have, so I will certainly not be voting for her because of this! I will be voting for Obama because of many reasons but one is that he is involved with the autism community and has them included in his plans for the future.</p>
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		<title>By: Kathy Ratkiewicz</title>
		<link>http://www.patriciaebauer.com/2008/09/15/paul-longmore-open-lette-3205/comment-page-1/#comment-2850</link>
		<dc:creator>Kathy Ratkiewicz</dc:creator>
		<pubDate>Tue, 07 Oct 2008 01:57:56 +0000</pubDate>
		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=3205#comment-2850</guid>
		<description>Just as some people are amazed that a parent of a child with Down syndrome would vote for McCain and Palin simply because of Trig Palin, I am amazed that parents are expected to vote for Obama simply because of his promises on disability issues. I am the parent of a child with Down syndrome, and I find Obama&#039;s policies on abortion repugnant. If he can&#039;t be trusted to protect the most vulnerable people with disabilities, why should I trust him to help them after they are born?

Thanks, but no thanks.</description>
		<content:encoded><![CDATA[<p>Just as some people are amazed that a parent of a child with Down syndrome would vote for McCain and Palin simply because of Trig Palin, I am amazed that parents are expected to vote for Obama simply because of his promises on disability issues. I am the parent of a child with Down syndrome, and I find Obama&#8217;s policies on abortion repugnant. If he can&#8217;t be trusted to protect the most vulnerable people with disabilities, why should I trust him to help them after they are born?</p>
<p>Thanks, but no thanks.</p>
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		<title>By: Karl</title>
		<link>http://www.patriciaebauer.com/2008/09/15/paul-longmore-open-lette-3205/comment-page-1/#comment-2845</link>
		<dc:creator>Karl</dc:creator>
		<pubDate>Mon, 06 Oct 2008 16:05:51 +0000</pubDate>
		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=3205#comment-2845</guid>
		<description>Let me start of and say I am a father of a special-needs child.

You fail to consider how important it is to have a parent of a child with a disability in the White House. Once the campaign is over, and the promises forgotten, who do you think will still remember about special-needs children? Obama? No. Biden? No. McCain? No. Palin? Yes!

The fact she has a special-needs child means she will learn first hand what it takes. To me, that is worth more than anything you have cited because most of those issues are pre-Trig. 

You also neglected many positives by Palin while she was governor of Alaska. For example: Palin tripled funding for high-cost special needs children from $26,900 per student in 2008 to $73,840 per student in 2011. If you are going to do research, please make sure it is complete instead of presenting just one side when it suits you. 

&quot;Palin also cut $125,000 in funding for assistive technology for people with disabilities.&quot; This is for Alaska&#039;s 2009 budget. But, you failed to do any research on it. What was the technology for? Why did she veto it? The answers require research but perhaps you didn&#039;t want to know the answers? For all I know, it could be 60&quot; Hi Def TVs for people in nursing homes. As of now, all you are doing is echoing other blogs.</description>
		<content:encoded><![CDATA[<p>Let me start of and say I am a father of a special-needs child.</p>
<p>You fail to consider how important it is to have a parent of a child with a disability in the White House. Once the campaign is over, and the promises forgotten, who do you think will still remember about special-needs children? Obama? No. Biden? No. McCain? No. Palin? Yes!</p>
<p>The fact she has a special-needs child means she will learn first hand what it takes. To me, that is worth more than anything you have cited because most of those issues are pre-Trig. </p>
<p>You also neglected many positives by Palin while she was governor of Alaska. For example: Palin tripled funding for high-cost special needs children from $26,900 per student in 2008 to $73,840 per student in 2011. If you are going to do research, please make sure it is complete instead of presenting just one side when it suits you. </p>
<p>&#8220;Palin also cut $125,000 in funding for assistive technology for people with disabilities.&#8221; This is for Alaska&#8217;s 2009 budget. But, you failed to do any research on it. What was the technology for? Why did she veto it? The answers require research but perhaps you didn&#8217;t want to know the answers? For all I know, it could be 60&#8243; Hi Def TVs for people in nursing homes. As of now, all you are doing is echoing other blogs.</p>
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		<title>By: Karyn</title>
		<link>http://www.patriciaebauer.com/2008/09/15/paul-longmore-open-lette-3205/comment-page-1/#comment-2814</link>
		<dc:creator>Karyn</dc:creator>
		<pubDate>Thu, 02 Oct 2008 03:44:25 +0000</pubDate>
		<guid isPermaLink="false">http://www.patriciaebauer.com/?p=3205#comment-2814</guid>
		<description>I am a conservative. I don&#039;t think that big government is the answer to my problems as a person with a disability. In fact, I don&#039;t think that government can do much for me that it doesn&#039;t already do. I do like the idea of not taking the Medicare away if I have a job for more than 8 months that makes too much money.

The reason that the presidential candidates don&#039;t focus all their efforts on such a huge group as us people with disabilities and our friends and relatives is that ours is not the only issue, and it&#039;s a relatively minor issue for the president. We need advocates in Congress. As a former Navy Brat and Marine wife, I am very uncomfortable with the idea of Obama in the White House.

I honestly don&#039;t feel like politicians can do much for me in general. I became disabled in a car accident at the age of 25. Before that I thought that discrimination was a thing of the past because it&#039;s illegal. Now I know how silly that was, but I was clueless.

The ways to change how I&#039;m treated by this society are
#1 Raise awareness.  I am so happy that Palin is a candidate, no matter who wins, because simply being a candidate brings these issues to the spotlight.
#2 Children. Through Ability Awareness in Action, children can value our diversity and focus on people&#039;s abilities.  This will gradually change how society treats us.

This article was informative for me because there were so many points where there&#039;s simply no data for the McCain Palin camp. So, I&#039;m going to write them and ask them to let us know where they stand now. I don&#039;t want to know where they stood 5 years ago.  I want to know where they stand now.

Six years ago, I had no idea what life was like as a person with a disability.  So, my perspective&#039;s completely different. I want to know how Palin&#039;s perspectives have changed as a mother of a child with a disability, and I want to know how McCain&#039;s perspectives have changed as he&#039;s getting to know her and reading articles like this.

Palin&#039;s views are going to continue to evolve as she watches her son grow up in this society. I hope that she&#039;ll be a good influence on McCain. For now, I&#039;m still going with McCain as the lesser of two evils. I don&#039;t want a Socialist president, even if he has a Democrat label. So I&#039;ll take the Democrat president with the Republican label.</description>
		<content:encoded><![CDATA[<p>I am a conservative. I don&#8217;t think that big government is the answer to my problems as a person with a disability. In fact, I don&#8217;t think that government can do much for me that it doesn&#8217;t already do. I do like the idea of not taking the Medicare away if I have a job for more than 8 months that makes too much money.</p>
<p>The reason that the presidential candidates don&#8217;t focus all their efforts on such a huge group as us people with disabilities and our friends and relatives is that ours is not the only issue, and it&#8217;s a relatively minor issue for the president. We need advocates in Congress. As a former Navy Brat and Marine wife, I am very uncomfortable with the idea of Obama in the White House.</p>
<p>I honestly don&#8217;t feel like politicians can do much for me in general. I became disabled in a car accident at the age of 25. Before that I thought that discrimination was a thing of the past because it&#8217;s illegal. Now I know how silly that was, but I was clueless.</p>
<p>The ways to change how I&#8217;m treated by this society are<br />
#1 Raise awareness.  I am so happy that Palin is a candidate, no matter who wins, because simply being a candidate brings these issues to the spotlight.<br />
#2 Children. Through Ability Awareness in Action, children can value our diversity and focus on people&#8217;s abilities.  This will gradually change how society treats us.</p>
<p>This article was informative for me because there were so many points where there&#8217;s simply no data for the McCain Palin camp. So, I&#8217;m going to write them and ask them to let us know where they stand now. I don&#8217;t want to know where they stood 5 years ago.  I want to know where they stand now.</p>
<p>Six years ago, I had no idea what life was like as a person with a disability.  So, my perspective&#8217;s completely different. I want to know how Palin&#8217;s perspectives have changed as a mother of a child with a disability, and I want to know how McCain&#8217;s perspectives have changed as he&#8217;s getting to know her and reading articles like this.</p>
<p>Palin&#8217;s views are going to continue to evolve as she watches her son grow up in this society. I hope that she&#8217;ll be a good influence on McCain. For now, I&#8217;m still going with McCain as the lesser of two evils. I don&#8217;t want a Socialist president, even if he has a Democrat label. So I&#8217;ll take the Democrat president with the Republican label.</p>
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