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He’ll chronicle life with Alzheimer’s

September 3rd, 2008

USA Today announces the first in an occasional series of news stories about Bob Blackwell, a 30-year CIA veteran who has been diagnosed with early-stage Alzheimer’s disease. Blackwell will also share his experiences at health.usatoday.com.

Blackwell hopes sharing his experiences will build awareness, bust a few myths and blaze new paths toward treatments and a cure: “Putting my experiences out in the light, as opposed to the dark, will help others. I don’t want the next generation to have to deal with it.”

… The Blackwells were disappointed with the lack of guidance at the time of Bob’s diagnosis. Knowing Alzheimer’s can take a path of decline that can last a decade or more and ends in death, they longed for tools to help them traverse the years ahead. “We went away feeling like it was a death sentence. The doctors could have done more than say, ‘You’ve got Alzheimer’s, here’s a website, we’ll see you in six months,’ ” Carol says.

(USA Today photo)

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More than 50 million people in the United States have disabilities, a number that is growing rapidly as the population ages. Experts say disability will soon affect the lives of most Americans. This website attempts to aggregate news and commentary about disability, and to document the efforts of people who are seeking new ways to address familiar challenges.

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