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Public health experts: National registries needed

August 6th, 2008

From the Baltimore Sun:

Public health experts say the nation needs to set up national health registries, similar to those now in place for cancer, to track trends and focus research on a long list of conditions. Among them are Alzheimer’s disease, autism, multiple sclerosis, asthma and heart disease.

Registries for birth defects are in place in only 15 states, according to the CDC. Cancer registries contain information on the age, race, gender, county of residence, diagnosis, treatment and outcome for patients across the country.

Scientists say the cancer registries have been valuable in learning the causes and trends of cancer, and in developing prevention and treatment strategies. “We also can have those benefits for other diseases,” said Thomas A. Burke, an epidemiologist and professor in the Johns Hopkins University’s Bloomberg School of Public Health. “It takes political will, and it does take funding, but there’s an awful lot of interest there.”

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More than 50 million people in the United States have disabilities, a number that is growing rapidly as the population ages. Experts say disability will soon affect the lives of most Americans. This blog attempts to explore what we know about disability, and to chronicle the efforts of people who are seeking new ways to address familiar challenges.

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