Associated Press in U.S. News & World Reports:

As Alzheimer’s patients are receiving earlier diagnoses, there is a growing movement of people demanding better care, increased research, community support, and respect.

They are giving a voice to a disease whose victims until now have remained largely silent, and powerless. It’s a shift with big ramifications.

Alzheimer’s patients are joining their counterparts with cancer and HIV to lobby Congress for more money to hunt treatments. Some are advising top scientists to push for higher-stakes research even if it means higher risks. They’re even offering unprecedented glimpses into how a mind slowly unravels as they blog about their dementia.

… One message: A huge hurdle is the stigma of a disease known mostly for its devastating end stage.

This entry was posted on Friday, June 13th, 2008 at 10:04 am and is filed under advocacy, alzheimer's, cancer, research news, stigma. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.  Email This Post