Disability news, Accessibility Issues, Disability Issues, Accessiblity News

Patient websites offer support to patients, families

June 9th, 2008

From The Associated Press:

Patient websites enable those with a range of critical and chronic illnesses to provide progress reports and receive support — all without having to repeat details in exhausting phone calls. Medical professionals praise the online tools for addressing the “emotional needs” of patients.

Free online services like CaringBridge and Carepages offer user-friendly formats that allow people to quickly set up sites to share medical and personal news. CaringBridge is supported primarily by donations from users, as well as sponsor fees from hospitals. CarePages also has arrangements with hospitals and sells advertisements.

On both sites, patients and family members share information about treatment and recovery from illnesses, accidents, or other medical crises. “We just think it’s made a huge difference for families,” Alan Goldbloom, president and CEO of Children’s Hospitals and Clinics of Minnesota, says of CaringBridge.

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More than 50 million people in the United States have disabilities, a number that is growing rapidly as the population ages. Experts say disability will soon affect the lives of most Americans. This blog attempts to explore what we know about disability, and to chronicle the efforts of people who are seeking new ways to address familiar challenges.

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