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Book excerpt: Mom celebrates her son, the Hollywood star

May 19th, 2008

Fifteen-year-old Max Lewis has Down Syndrome

From the [UK] Daily Mail:

Sandy Lewis’s son played a featured role in the film Notes on a Scandal, starring Cate Blanchett and Judi Dench. In her upcoming book, “Living with Max,” Lewis reflects on people’s insensitivity about her son’s diagnosis.

One night, I went for a drink with a friend, Emma, and the subject turned to producing a healthy baby. Emma was clear that she wouldn’t hesitate in terminating a disabled fetus.

“Even though I have a second cousin with Down syndrome, we’ve not got any poisoned blood running in the family,” she said.

“So there’s no way I would produce a child with such a poor gene pool. I’ve no need to worry.”

I haven’t spoken to her since.

Earlier post here.

See also: Hollywood’s doors opening for actors with disabilities

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More than 50 million people in the United States have disabilities, a number that is growing rapidly as the population ages. Experts say disability will soon affect the lives of most Americans. This blog attempts to explore what we know about disability, and to chronicle the efforts of people who are seeking new ways to address familiar challenges.

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