Oklahoma woman, family fight removal of home care
May 9th, 2008Attorney says she could die if she’s sent to a nursing home
From the Tulsa [Oklahoma] World:
Lindsey Easton, of Glenpool, Oklahoma, has lived at home most of her life under the care of her mother and 16 hours a day of skilled nursing care provided by a Medicaid program. Easton has infantile onset Pompe’s Disease, and is dependent on a ventilator and feeding tubes.
Easton’s Medicaid coverage ended when she turned 21 in September. She was subsequently denied coverage by Oklahoma’s Advantage Waiver program when it was determined that her care would exceed the program’s cost cap. She is now challenging that decision in court, arguing that the state’s action is a violation of the Americans with Disabilities Act and the Rehabilitation Act.
Easton has led a full and engaging life as an avid reader, Girl Scout and co-valedictorian of her graduating class at Glenpool High School in 2005. … Housing her in a nursing home could lead to medical complications, extended hospitalizations and premature death, according to her legal brief, which cites statements from Easton’s doctor and nursing case manager.
… Laurie Easton, Lindsey’s mother, said she’d never put her daughter in a nursing home and is turning to the courts because she sees no other option. She has had to fight many bureaucratic battles over the years, she said.
“We’re just normal people trying to do the right thing,” she said. “We love our kids.”
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