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Columnist: Parents should resist urge to test kids’ genes

March 3rd, 2008

Children could be screened for genetic diseases, but parents should let them decide later. Why? Early detection doesn’t mean a cure, and there could be psychological risks.

Writing in the Los Angeles Times, Dr. Valerie Ulene makes the point that not all genetic information is beneficial and some can be toxic. More often than not, she says, testing for a genetic abnormality brings only anguish, as parents and children are given information that will not help them prevent a disease or delay its onset.

… parents must realize that detection doesn’t necessarily lead to a cure. Currently, our ability to treat genetic diseases lags well behind our ability to identify the genetic changes that cause them.

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More than 50 million people in the United States have disabilities, a number that is growing rapidly as the population ages. Experts say disability will soon affect the lives of most Americans. This blog attempts to explore what we know about disability, and to chronicle the efforts of people who are seeking new ways to address familiar challenges.

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