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Politician credits career to daughter with Down syndrome

January 20th, 2008

From the [New Jersey] Star-Ledger:

Steve Sweeney, New Jersey’s new Senate majority leader, says his daughter Lauren is the “driving force” that inspired his career in politics. He was a South Jersey ironworker and union activist when Lauren was born 14 years ago, weighing just 2 pounds and carrying a diagnosis of Down syndrome. Sweeney and his wife Patti learned politics by “fighting for their daughter’s care against government agencies that seemed designed to make life more difficult for parents like them.”

“When (Lauren) was born, she literally fit in the palm of my hand,” he said. “They told us she had Down syndrome and, I mean, it was devastating to me. I couldn’t talk. I had trauma where my vocal chords were actually paralyzed for a couple of days. I couldn’t talk.

“The doctor told me ‘you were given a gift.’ I almost. … punched him I was so mad. I said ‘Gift? A retarded child is a gift?’ I was nuts.”

Lauren is now a two-sport Special Olympian in basketball and equestrian competition. She also is a statewide gold medalist in riding.

“She will always be the greatest gift in the world to me,” said Sweeney, who also has an 18-year-old son, Stephen.

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More than 50 million people in the United States have disabilities, a number that is growing rapidly as the population ages. Experts say disability will soon affect the lives of most Americans. This blog attempts to explore what we know about disability, and to chronicle the efforts of people who are seeking new ways to address familiar challenges.

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