Comments on: Down syndrome group calls for true informed consent in prenatal testing http://www.patriciaebauer.com/2008/01/18/down-syndrome-group-calls-for-true-informed-consent-in-prenatal-testing/ Disability News | PatriciaEBauer.com Sat, 11 Oct 2008 11:58:38 +0000 http://wordpress.org/?v=2.5.1 By: Jeannette http://www.patriciaebauer.com/2008/01/18/down-syndrome-group-calls-for-true-informed-consent-in-prenatal-testing/#comment-1012 Jeannette Fri, 13 Jun 2008 19:37:13 +0000 http://www.patriciaebauer.com/2008/01/18/down-syndrome-group-calls-for-true-informed-consent-in-prenatal-testing/#comment-1012 I did not choose to have this screening done during my pregnancy. I'm glad I didn't. If I had, I might have aborted the best thing that's ever happened to me. I did not choose to have this screening done during my pregnancy. I’m glad I didn’t. If I had, I might have aborted the best thing that’s ever happened to me.

]]> By: David Forney http://www.patriciaebauer.com/2008/01/18/down-syndrome-group-calls-for-true-informed-consent-in-prenatal-testing/#comment-527 David Forney Fri, 25 Jan 2008 18:58:30 +0000 http://www.patriciaebauer.com/2008/01/18/down-syndrome-group-calls-for-true-informed-consent-in-prenatal-testing/#comment-527 After reading Practice Bulletin 88, I was left wondering why the ACOG was so loose in defining the terms for offering invasive testing. The language is vague, saying an invasive procedure should be offered to all expectant mothers regardless of age. I found that incomplete on the obvious grounds that there is no reason for an invasive test unless a prior screening test indicates a high probability of Down Syndrome. David Forney 1st Vice President NDSC After reading Practice Bulletin 88, I was left wondering why the ACOG was so loose in defining the terms for offering invasive testing. The language is vague, saying an invasive procedure should be offered to all expectant mothers regardless of age. I found that incomplete on the obvious grounds that there is no reason for an invasive test unless a prior screening test indicates a high probability of Down Syndrome.

David Forney
1st Vice President
NDSC

]]> By: James Faber http://www.patriciaebauer.com/2008/01/18/down-syndrome-group-calls-for-true-informed-consent-in-prenatal-testing/#comment-526 James Faber Tue, 22 Jan 2008 01:50:38 +0000 http://www.patriciaebauer.com/2008/01/18/down-syndrome-group-calls-for-true-informed-consent-in-prenatal-testing/#comment-526 Patricia, Thank you for helping to raise awareness by posting the NDSC statement on your website. I serve on the NDSC Board of Directors and was present in Boston last week as we unanimously adopted the statement in response to ACOG bulletin #88. I am a parent and advocate for ALL citizens with disabilities, and together we are changing lives for the better. It is too easy in today's information age to get only a sound bite, and we all need to ensure that everyone has full and complete information to make informed decisions. Keep up the good work!! Patricia,
Thank you for helping to raise awareness by posting the NDSC statement on your website. I serve on the NDSC Board of Directors and was present in Boston last week as we unanimously adopted the statement in response to ACOG bulletin #88. I am a parent and advocate for ALL citizens with disabilities, and together we are changing lives for the better. It is too easy in today’s information age to get only a sound bite, and we all need to ensure that everyone has full and complete information to make informed decisions. Keep up the good work!!

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