Disability news, Accessibility Issues, Disability Issues, Accessiblity News

Lab rat?

December 15th, 2007

Sam Hutchison has cancer. His father is seeking a cure beyond the edge of medicine

From the Wall Street Journal, a feature on Neil Hutchison, San Diego defense-contractor recruiter who is dosing his son’s cancer with a cocktail of drugs that he concocted himself.

… he’s part of a growing underground pushing the edge of medicine to find combinations of anticancer agents to save themselves or loved ones. Many of the medicines Sam takes haven’t been tested in clinical trials for his disease. Some are meant for other illnesses; others are still in animal testing for safety and efficacy. But the fact is that Sam, who suffers a rare and often-deadly cancer of the nerves, is otherwise almost certain to die. Hence Mr. Hutchison’s decision, as he puts it, to play “lab rat” with his son.

… The practice is particularly worrisome to those running clinical trials. While only a small minority of cancer patients are cobbling together their own cocktails, they’re often the same people — the desperate and the risk-takers — who would otherwise volunteer for new drug trials.

Just one of those coincidences: David Kessler, who’s quoted in this story as dean of the school of medicine at UCSF, was fired yesterday. Story here.

One Response to “Lab rat?”

  1. Garrett Jansen Says:

    As with assisted suicide, volunteering to be a “lab rat” is influenced by numerous factors that inherently threaten its preconceieved status “voluntary.” I believe it vital to insure the mental health and social support of those with cancer is sufficient so that, if they volunteer to be “lab rats,” they are truly doing it because they want to.

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More than 50 million people in the United States have disabilities, a number that is growing rapidly as the population ages. Experts say disability will soon affect the lives of most Americans. This blog attempts to explore what we know about disability, and to chronicle the efforts of people who are seeking new ways to address familiar challenges.

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