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Early drug development relies on charity

August 14th, 2007

This story from the Boston Globe unveils a major grant for research into cystic fibrosis, but the real story lies elsewhere. Increasingly, the writer says, pharmaceutical companies rely on nonprofits to fund early stage drug development. The reason: private investors find such research too risky. The result: nonprofits are changing the face of drug research.

The problem is particularly acute for “orphan diseases” such as cystic fibrosis, which affect relatively few people and therefore present limited financial incentive for pharmaceutical firms to research treatments.

… Nationwide this year, charitable foundations such as the Cystic Fibrosis Foundation, Juvenile Diabetes Research Foundation, Michael J. Fox Foundation for Parkinson’s Research, Multiple Myeloma Research Foundation, and Muscular Dystrophy Association will pump about $75 million into drug-development research by biotechnology firms, according to CenterWatch Monthly, an newsletter that covers the pharma and biotech industries.

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More than 50 million people in the United States have disabilities, a number that is growing rapidly as the population ages. Experts say disability will soon affect the lives of most Americans. This blog attempts to explore what we know about disability, and to chronicle the efforts of people who are seeking new ways to address familiar challenges.

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